Hello again
I am not sure what to write. Mom has not gotten sick from the stomach flu that is going around the floor. 6 nurses and care aids have succumbed to the illness, so far/. More residents are getting sick. No one wants to come to the floor. I have not even seen the familiar faces of the residents loved one's. But mom is fine. So am I.
I have no spleen, lost it when I was 5 years old. So I am to have a suppressed immune system. Causing me to get sick more often then the average individual. Well it has worked the opposite in me.
I am also outside allot and getting exercise. I let the rain fall upon my head. And I like it.
Now the problem I have is that mom has been stuck in her room for a week now. I do want to thank the morning shift for turning mom's bed, as I have asked, so she can at least see the TV. The way they had it, mom could not see, as the padding on the railings was blocking her view. So if any of you are reading this. I thank you.
I think tomorrow I will take mom out to our spot, by the balcony, for dinner. Change of scenery will also do her good.
Bath day today, so mom was in bed all day. After dinner I changed her sheets again. Yes i did it early this week, but she was in bed for 4 days straight. They needed to be changed.
For me. I need help and I can't get any.
Yes there are a few or many of you who think I don't need help. Get a job and you won't go without. I tell you this. I have a job that most of you would not even consider doing. And I have been doing this for a very long time. I have not missed one single day since mom has been living in White Rock. I do everything for my mother once I am their. Yes even changing her pad/diaper. No one pays me for this. No one helps me with this. Not a single person has even thought of giving me any kind of assistance. So walk a mile in my shoes. I love doing this. The smile on my mother's face when I leave makes it all worth while.
GOD doesn't even help me. GOD helps those who helps themselves. Well I am doing everything I can to get some kind of assistance. And nothing. I keep getting turned down. Even my doctor has back peddled on what he originally wrote.I am on the phone for hours each week trying to get something happening. Now I have to get the form back from the doctor and find someone else to fill it out. This is going to be an interesting conversation on Monday with the doctor
I need the form back. But why. If you are not going to sign it, I need to find someone who will. Another doctor. It is time sensitive.
I need hearing aids. I would like to hear properly.I am not loosing my hearing, I am partially deaf now. I don't hear behind me. This is a huge stressor for me. Causing me to be turning around all the time, To see if there is anyone behind me. Or a car right behind me.I have this other condition that the neurologist is telling me I have. Parkinson's. I will wait for a second opinion. As it is I am freaking out. My right hand is shaking allot.
I go to the food bank this past week and all that was in the bag was cereal, pasta and canned foods. I gave the canned foods to someone else as well as the cereal. I don't even have anything to go with the pasta. And because I am gluten sensitive, I am not even suppose to eat this type of pasta. Made with white flour.
I can't even eat healthy. I am mostly vegetarian. I do eat chicken and sometimes beef. That is it. So if I can't even eat healthy then I guess I won't eat at all. I just can't eat anything from a can. I get sick. So again. If I can't eat healthy, I just won't be eating. As it is now.
Now mom knows nothing about what is happening in my life. I would never tell her anything like what is really happening. I hate to lie to her, but she doesn't need to hear any of this. Mom has enough going on already.
Do any of you really know what it is like to live with strokes or dementia or both . Or do you know what it is like to be wheelchair bound and completely dependent on everyone for everything. No you don't. I do! I have seen my mother go through everything that has happened to her. I have been there.Without fail.
So if you wish to judge me, again walk a mile in my shoes. You would never be able to do it for one thing. No one could ride the bus everyday for hours at a time as I do. From the mountains to the ocean. Back and forth. Back and forth. Back and forth. Back and forth. Daily. And not complain about it.
I am not complaining. I do it, as it needs to be done. I have no family, I have no friends. I am by myself and doing everything by myself. Does anyone even think this is the only thing I do, is write this blog. NO! I fight with the PGT and am in the middle of something with them now. I fight Fraser health. Trying to get some action for a staff member smashing my mother's head with the lift bar. We don't know who was on that day. They know exactly who was on that day. But refuse to admit it. To deny, isn't life grand. That alone takes a very long time to do anything. To much red tape. Fill this form out. Sign this release form.Wait two months to be told, we don't know.
Than on top of this I do everything I can to make my mother's life better each and everyday. I am worried about her all the time. I try to get in touch with her doctor, but her never returns my calls. There are many things I need to discuss with him.
It is a full time job doing what I do for mom. And I love doing this for her.
GOD bless and good night.
Kristopher Schmuland
Oh yes.
I do want to thank all who read this Blog. From countries all over the world. I thank you!
