Saturday, April 11, 2015

Beautiful wind

Hello again

A very nice wind storm that was happening and is happening this day. I love the wind. But not wind and rain at the same time. It rains side ways then. Especially her in the LowerMainland.

Well bath day for mom, but the girls did not understand that they just give mom a Bath and put her back to bed. So an extra set of clothing was in the hamper. At least they put it in the hamper. As they were putting mom's dirty clothing in with the laundry again. I would prefer mom to be up on her bath days. But it is breakfast in bed for mom on Saturdays. So I make her a nice breakfast. I tried something different on Saturdays once before and mom did not like this. She looked at me, as where is my breakfast for dinner. Then the next day I brought her the breakfast and she gave me this look,  as in it is not Saturday, you gave me something different yesterday and now breakfast, but I am up. I read mom very well.

Extra clothing to bring home. We finished dinner, mom ate the meat portion of the served dinner. Had dessert and then it was time to change her sheets and put the clean duvet cover on. The nurse came in while I was doing this and asked me how am I going to change mom's sheets while she is in bed. I do this every Saturday, I can do this without rolling mom on her sides. She just said, your hired. My response again was I have been doing this for over a decade, I think I know what to do by now.

And mom just loved this. Clean sheets and duvet cover. Clean night gown, then the massage and lotions. No wonder she has a big smile on her face as this is happening. I am singing to her at the same time..  Mom just closes her eye's and smiles in relaxation. She knows when I am done, then she reaches for my hand. Time to hold my hand while I fall asleep.


GOD bless and good night

Kris Schmuland

Friday, April 10, 2015

It is going to be the same.

Hello again

I did mention that mom has a new roommate. Well her children brought a TV in for her. Flat screen and they put the blank TV almost at the foot of mom's bed. And we all know that Flat screen TV's have the speakers in the back. It is 4' away from the foot of mom's bed. It is already disturbing her. What idiot would even consider putting the TV there. I am loosing my hearing and I can hear it. The roommate has it on that loud. And the women has an alarm on her wheelchair and is constantly trying to get up and when she does this, the alarm goes off.

What ever happened to peace and quite. Another example of the staff not taking into consideration the individual who is already in the room. What their feeling are about this. Mom does not like loud. I turn the music down to a lower volume when I leave and only mom can hear it. I have respect for other's. This women doesn't.

Everything was fine until this women came back into the room and then it  became aggravating. You can say all you want about me,But when it comes to my mother, I really don't care what anyone thinks of me. My only concern is my mother and her well being. Actually, "What other people think of me is none of my business!" This is a motto that I live by. And if it is already bothering her, than it needs to be changed right away.

It could change, I am ranting. But I will be speaking with them tomorrow.

Now the case manager at the PGT writes me today and tells me she needs conformation from somebody at Al Hogg about the changes. Even though they straight out and lied to her. I spoke with the manager and I got the typical response. It may be a misunderstanding. I told her it was a straight out lie. I checked it out the very next day after receiving the email. And there was no stop order and then the doctor approved it again.

What do they think. That I wouldn't check. They must think everyone is an idiot.

I am trying to compromise,instead of getting that crap adaptive clothing, I am willing to alter some of mother's good clothing. This is what the manager and I have worked out.

Done with my rant.

Mom on the other hand was in good spirits when she saw me. I made her a beautiful dinner. And she ate all of it. Very healthy.

I spilled tea on her shirt and I had to get the shirt off of her right away to rinse it. Tea is extremely hard to get out. I have washed and washed several articles of clothing of mom's over and over again. To try to get the Tea out. Sometimes I just had to throw it out. So it is now soaking in hot water with some stain remover on it. I will change the water in the morning and soak it all day tomorrow as well.

After this, I finished feeding mom. By the way. I get to do this and I am so proud that I get to do this. It was onto the spa treatment, the neck massage and foot massage. Daily. Her different lotions for the different areas of her body. And when I am done, there is this huge smile on mother's face. She is so relaxed and calm. I make sure I give her something to drink before I leave and then a touch up. I spill a little bit on her, so those areas need to be touched up.

Of course I sing to her. And again it wasn't until I started to sing to mom that I realized that I can actually sing. The care aid said to me yesterday that I sing very well. And asked if I sang or was a singer before. I just told her what I just wrote down to y'all. Like the bit of American I threw in. I don't know why but it is coming out more these days.

I held her hand as long as I could. It was a bit of a rush evening. I got there late and didn't start mom's dinner until 5:30, by the time I got everything ready. And mom is a slow eater. As am I. And I hate to rush her. Going to be getting there earlier from now on.

Late again. I ended up getting home later this evening as well. After 10:30. So by the time I get mom's laundry in and turn this extremely slow to start computer on, and get changed it is late.

I still have some emails to write, but I think I will wait until the morning.

Please pray for mom and I. I need to find a place ASAP. I am loosing it, living here. I am moving to do more for mom.

I am not doing this for me, but so a member of my mother is not alone, going through what my mother is going through. I know what alone is and I do not want my mother to feel that way. It is not a good feeling being isolated, with no one around to speak to or just sit with with you. And I will do anything to make sure my mother is not alone.

GOD bless and good night.

Kristopher W.A. Schmuland

Wednesday, April 8, 2015

Whatever

Hello again

Well tomorrow mom will be getting a new roommate. I hope this one is OK. But I hope the staff have informed them that I am there everyday, and what I do for my mother. That I am there until 8 pm getting mom changed for bed, singing to her and giving mom her spa treatment. I have been doing this for years and I will not change. You may say I am an asshole, but oh well. This is the way it has been and this is the way it will be........

I mentioned before that a staff member has been calling the PGT. And I said that I think I know who it is. The LPN that I think is the one who has been calling, has been working these last few days and has not said a word to me....... Guilty! I do think so myself.

Now that the manager and I have spoken on the subject of mom`s clothing. I have to write the case manager at the PGT and get help to alter mom`s nightgowns and get some undershirts. I will not be working with Janet on any issue. I work with the management and that is all with which I will speak with and deal with.

So the last 4 nights mom has had the room to herself. She has enjoyed this. Very private.

Other than that mom is doing very well. No changes. Steady as she goes.

After this it was the usual again. The spa treatment and just staying with her. I get to do this. It is a privilege to be able to be there and do these things for mom.

I have to stop writing now. After midnight and I still have to make something to eat. I made mom a nice pasta bake for dinner tonight. She had the meat portion of the served meal.

Pray Please. I really don`t want to be here anymore... I need my space for mom and I to enjoy.

GOD bless and good night

Kris Schmuland

Monday, April 6, 2015

It is a fine day, I guess

Hello again

Mary, mom is doing fine today. Except they had her in her room when I arrived. Not a fan of this at all. She needs to be out sharing with people, around them. Even if she can't speak, Mary, mom knows what is going on and likes to be included. Not isolated. She gets this when I get there. But mom like this. She doesn't like to share our time together. She will get made if I am spending to much time speaking with other's. So I try to limit that.

Tonight mom ate all her dinner before the served dinner came. Sushi, salad, and avocado. Then her usual Papaya and Lindt chocolates.

Mom has eaten a Papaya and avocado everyday since she has been there. Plus other fruits and the daily smoothie. Everyday. This is what is keeping her healthy. Plus the home cooked meal she gets each day.

Trying to get her weight down. I can see it is working. A little bit at a time.

Tonight we exercised her arms. Push and pull her left and right arm. This mom wants to do, And then tried to open her left hand a bit. A little bit each day and soon her left arm and hand will work fine. Okay better than what it is doing now.

We finished everything early, so we had to wait a while for the care aid to come in. I sat and held mom's hand, sang to her.

I will have to quite smoking. I won't be able to sing to her if I continue. So top priority. I will save allot of money. As mentioned before down to 3 packs per week. When I am down to 1 pack it will be time to quite.


After mom was in bed, she was very tired. Good meal, brushed her hair, and held her hand. So she only wanted her face, neck and arms done tonight.

Then it was time to just be there for her. Holding her hand while she falls to sleep. Singing softly to her.

Packed up and left.

Please continue to pray for mom and I. The sooner I move out there the better. And pray that I find the funds to purchase hearing aids. I really don't like not hearing behind me and having to keep asking people to repeat themselves.

I sometimes feel like giving up.

GOD bless and good night

Kris Schmuland

Sunday, April 5, 2015

Another sad day of loss

Hello again

Yesterday my mother's roommate passed away. She was doing so fine the day before. She actually had a chance to go home for the first time in a year and a half. And she enjoyed it tremendously.

Then the next day she became ill and passed away. Just like that. I look at it like this. " She got to go home, then she went home." Think about it!.................

I told mom and I know she felt something and new what was going on before I even told her. Mom is more with it than anyone thinks. I see it in her all the time. The sarcasm, which is great. Today when I brought it up, as her husband came and cleaned out the roommates side of the room. I will miss them both. I enjoyed speaking with the two of them. The roommate and her husband.  But anyways, when I brought it up tonight I could see sadness in mom's eye's. I just held her hand tighter and told her that I loved her. Gave mom a gig hug. This she motioned for... Mary, mom will lean, from her left side, towards me. This means she wants a hug.

It is Easter. The resurrection of Christ. And everyone has there Easter dinner. Mom was no exception. I made her a nice stuffed (seafood,cheese and green onion stuffed) chicken breast, dipped in an egg wash then rolled in a seasoned panko crumbs. Along with Brussels sprouts and tri colored baby potatoes, with sautéed mushrooms and topped with green onions, then saved Asiago Cheese. Then just her normal Papaya and her Lindt chocolates. Plus I made a fresh smoothie this morning for mom.

That was mom's dinner. I really don't eat the same thing I make mom. I go without allot of times and I don't eat as well as she does. I just want to make sure mom has a very good home made dinner each night. There was a few potatoes left over as well as some Brussels sprouts and a little bit of chicken. I will be having that for my dinner. I might make a grilled cheese as well. Not the same, but oh well. This is the way I want it to be.


But mom was tired as she ate dinner. She did her, what I like to call, sleep eating. She will eat with her eye's closed. Yes she will eat this way and has done so often. Mom just trusts me that much. I will wait until she is finished chewing and then I just put a fork full up to her mouth and she will open her mouth and allow me to put the dinner into it. Without even opening her eye's. " I get to do this" 

So after dinner mom really just wanted to go to bed. Turn the TV off, or at least turn the volume off. But we had to wait. They really have a problem if I put mom to bed. Even though I have been doing this for many years. So we wait. We finished dinner and clean up early, so it was not even 6:30 pm when the care aid came in to put her to bed. And that is the usual time it it done.

I hurried in giving mom her spa treatment. She was just tired. Then I just stood there holding her  hand, singing to her. While she fell asleep. Her hand loosened, time to sleep. I sang our good night song to her, gave her a kiss good night. Done. Packed up, said good night to her and off I went and here I am. 3 hours later.

Nothing is new with me. Still can't hear behind me, People were calling to me in mom's home, didn't hear them. Hand is shaking more and more. I get my second opinion this month. We will see what this neurologist has to say. As mentioned the first one told me I have Parkinson's disease. I just know my hand is shaking, it has been going on for over a year.

I know I ask all the time, but I will keep asking for help. No one thinks what I am doing is worth helping me over. Isn't that nice. Taking care of a loved one doesn't rate in this world. But supporting someone on a crowdfunding site, making a new BBQ is worth one's support. REALLY. Tells me exactly what this world has become. I can't even get help to purchase hearing aids. Have the doctors prescription, but can't get help from anyone. Not even my own government. Or anyone else for that matter. I need to be able to hear what others are saying. I need to be able to communicate with the staff and the PGT concerning mom's care.  But supporting a portable BBQ on one of the crowdfunding sites, is something that is important. My arm shakes like crazy. To the point where I can't use it all the time. I just dropped things.

GOD bless and good night

Kristopher Schmuland