Friday, May 22, 2015

This is becoming

Hello again

I have just found out that the roommate is up watching TV until late, very late. Every night. So I will be having a word with the manager on Monday. Actually I am just going to write to the PCQO, the complaint department for Fraser Health . This is completely unacceptable. This is not healthy for mom. Mom needs sleep.

Also we have zero privacy. The women is in the room most of the day, blasting her TV. And then she goes for dinner and then right back at it. Mom has not even finished eating and there she is. The first thing she does is turn the TV on and it is extremely loud. I have to turn mom's TV up just to hear it.

It is also very apparent that this women doesn't have any respect for my mother either. If she did, she would not be watching TV that late when she knows mom goes to sleep at 8 pm. As many others do on her floor. And I have over heard her complain about me being there all the time.

This women should of been vetted before she even moved into the place. She is after all on a waiting list. And the social worker would or should of found out everything about this women before being placed with mom. BULLSHIT. BULLSHIT.  I have been lied to about this. Oh no we turn the TV off at 10 pm and take the remote control away. BULLSHIT. Another lie to add to the list.

So yea I am filing a complaint this weekend. Yes I am upset, okay extremely pissed off that they would even do this to begin with. This shows the lack of respect they have for my mother. She can't speak so we can do what the fuck we want and she won't complain.

Yes but I will and I will be speaking very LOUDLY!

They just haven't got it yet. Do not screw with my mother. And if anyone has a problem with this, to bad. I am sure anyone would do the same as me. Okay I really don't think this. considering most people don't even go to see their parent. And I am not just speaking about my mother's daughters. Remember I am there every single day, so I know who comes and who doesn't .

People even say to me, how can you do that, go every day. IT IS MY MOTHER, THE ONLY ONE I HAVE AND SHE SACRIFICED ALLOT FOR ME, MY TURN.

I have already, while writing this, printed out a form that is needed to file the complaint. Multi tasking. I just need to write a letter to attach to it. And then scan the consent form and mail both to the complaint office. Easy breezy. I have no idea where that saying came from, but it has been in my head for days now. Time I used it.

Friday, so it is fish day and a day to wash and style mom's hair. And it is very important for mom to have her hair washed and styled. It relaxes her, keeps her in a good mood. Mom looks forward to this. She knows what days we can do this.

So afterwards it was the usual spa treatment. But this time I sang like a crazy hummingbird. Yea some of you may think this is the ranting of a crazy person. Take care of your loved one and see if you don't do the same thing.

I am the nicest

I person you could meet, but when it comes to looking after my mother's interests, I will do whatever it takes to make sure mom is looked after properly.

There is not much else left to say. Except that I am bringing these new sheets for mom tomorrow and WOW! are they ever soft and luxurious.  I know mom will just love the feel of them.

I need to go, I have to eat something and relax before I try to sleep

Please pray for mom and I

GOD bless and good night

Kris Schmuland

Thursday, May 21, 2015

Time I think for shorts

Hello again

The problem with starting to wear shorts is, they are all packed up. And I have no idea what box they are in. I packed everything up months ago. Thinking I would be living in White Rock by now. I am not going through every box.

Hope to be living there soon. Before summer anyways.

Maybe. Only GOD knows. I have only asked HIM many times for help. And still nothing. I am a patient person, But come on now. Nothing is happening. I am trying everyday.

So I am on my third day of the smartphone fast. I only use it as a phone. And I am not using any other features of the phone. I am finding it very difficult. Especially on the bus ride home. Nothing is happening, it is quiet, no one is talking. Tonight it was a difficult ride home. Again I am only using it as a phone. And to check the time. That is it. When I got home I checked the emails, cleared them and tomorrow morning I will answer what is needed. Yes it is only once I leave this place the fast begins.

Now onto the more important things in this world. My mother. And taking care of her.

I have been bringing her this lovely salad she likes. Second day now and mom is just eating it up. Clearing the plate. And tomorrow she wants more. But only a little bit. I have something else for her. This salad is never wasted, nothing to through out. When it gets a few days on. It is time to use it for a stir fry. As everything in it can go into a stir fry. Nothing wasted.

So mom ate well again tonight. It is surprising how much mom will eat when she likes what is served to her. Though she did eat the meat portion of the served meal tonight. The wings were not thawed out yet.

Afterwards, being Wednesday, I took her to the tub room and washed and styled her hair. She is completely relaxed after this. I sing to her while washing and drying her hair. Nice sound in the tub room.

And back to her room to get her ready for bed. Since I had to bring home many items last night, to wash. Because of the dirty diaper being put on the chair. This was the first thing I did after getting her ready for bed. Put the clean sheet and pillow cases back on her bed.

The care aid came in and we got her into bed and she changed mom. Now this is the time I usually go and wash the dishes. But with this care aid I stay and help. So right afterwards I needed to go and do the dishes. I did feel guilty. Because this is the time for her spa treatment. I will have figure something else out for tomorrow. Do the dishes in the room and then after her spa treatment make my tea or make it before I leave. Something.

Well the spa treatment was great for mom. Her left hand is opening more and more now. I am rubbing the inside of her hand each night, with lotion. This is helping greatly.

We were done and the only thing left was to give mom something more to drink before I leave and hold her hand. I will be able to stay with her longer tomorrow night.

I sang to her and kissed her goodnight.

And by the way, the roommate is now watching TV at 11:30 at night and longer. Time for her to be moved. This will cause mom problems. Mom is trying to sleep at this time. It has been three weeks and the manager has done nothing about the roommate and the TV. Now it is getting worse. Time for an ultimatum,I will be giving the manger one week to move this women out of the room. Then I will be taking matters into my own hands.

There are people in there who like to watch TV all night long. This is where she belongs, with a similar type of person. Not someone who goes to sleep at a certain time.

I don't need mom getting sick because she isn't getting enough sleep or her sleep is being disturbed.

GOD bless and good night.

Kristopher Schmuland

Tuesday, May 19, 2015

Time for summer

Hello again

First I would like to thank the person from Qatar for reading, if you read this again. And again a special thanks to everyone else who has been reading this all along.

It is day two or three of not using my phone for anything but making and receiving calls. It is hard, I cheated, I guess, yesterday. I checked my bank balance on my phone, when a branch of my bank was right across the street. No checking or sending emails, no reading, no movies, no music. Unplugged. I never realized how much I used the phone for everything. Tuned out of society. It is not a matter of data, I have an unlimited plan. It is about being part of society. But it is very difficult, not to reach for the phone when on the bus.

For the last few days, the staff have had mom in her room, the drapes closed, the window closed, in her chair with a blanket on her. It is beautiful out, and being a beach community, The air is a nice salt sea breeze.

Mom is isolated enough, by not being able to speak. Now they put her away from everyone. The first thing I did when I arrived is to make a complaint about this to the nurse and then to the manager. Even though she doesn't speak, it is good for her to be out around other people. Even if it is to just listen to others talk. Being part of something.

This is the shitty day staff and the bitch of an OT.

On top of this I found a dirty diaper sitting on the chair in and around mom's pillows and blankets. Now I had to remove all the pillow cases and blankets. Then I needed to take them home and wash them.

This was not found until after I fed mom. So I was siting in a chair that had the dirty diaper on it. For who knows how long that diaper sat there. At least 3 hours, minimum. The day staff.

The day staff that constantly complained about having a difficult time dressing mom and wanting her clothing to be adapted or to purchase adapted clothing. Well I have had many items already adapted and do you think they are using them. NO. So if I ever hear another word about this, I will let them know what exactly it is that I think. And in the mean time I will now file another complaint. This time I am going to call there union, as well.

Now today I made mom the Rose salad, the big salad that I always make her. I brought a very large container full and it filled the plate up. Mom ate 3/4 of it. Plus some chicken. It was funny, she knew I was bringing it, and I was not fast enough getting it ready for mom. She had no problem chewing and swallowing the salad and chicken tonight.

After she couldn't wait to get into bed. She was full, she was listening to music. Relaxing and just waiting and wanting to get into bed and have her spa treatment completed. The care aid finally came in and mom was more than happy about this. And we know what was next, after she was put into bed. The spa treatment.

After I was finished the head nurse came in and was asking about the dirty diaper and the general cleanliness. I was all over this, explaining that I have found mom in dirty diapers many times. that they have now been leaving mom in the room, blanket on and the drapes and window closed. He is going to look into it. Him I trust.

Now yesterday mom was in her room, and I had to open everything up, again. Bring life into the room, Fresh air. I made her some very good meatballs. Easy to chew,soft and great tasting. I have figured out how to make meatballs that are not dry. Finally! That is the problem with meatballs. Whether you buy them pre made or you make them. To dry. Not anymore. Perfect.

Now the roommate, yesterday asked me why I come 7 days a week. She says that is why GOD created the 7 th day, to rest. I just simply responded by saying that this is one of the top commandments. Top three or four. Above all honor your mother and father. This is what I am doing.

Yes I  know it is painful to watch a parent age. Yet it is reality. I do the best I can and don't let mom know I feel pain because of this.

I am just trying to emulate my mother. She is the best person I know. Always did good for people. Was always there.

Mom made me possible, if it were not for mom raising me to the a good person that I am. I wouldn't be able to do what I am doing for her. Taking care of her. Without a second thought about doing it.

People keep telling me I am a good son. Yes, but if were not for mom.

I will leave it like this.

One thing. I am past denial over having Parkinson's. Past anger, I never went or will go to the bargaining stage. I am at the acceptance stage. What am I going to do about it anyways. Nothing. I have it, now I need to just deal with it. Yes is hard to realize this, but I will just do the best that I can.

Please continue to pray or if you wish Donate. So I can move to White Rock or get hearing aids. My hearing is getting worse off. I am constantly having to say excuse me, or pardon me. Or letting people know I am loosing my hearing. I simply can't afford hearing aids and there is no help out there to get them.

GOD bless and good night

Kris Schmuland

Sunday, May 17, 2015

A long weekend

Hello again

Well this is a long weekend her in BC. It is Victoria Day. One more day and things will be open again. To do business. This long weekend is no good to me.

I guess it was Friday since I last wrote. Saturday is the usual. Bath day for mom and back to bed they put her. I arrive and I have to immediately remove some of the blankets. They have so many on her and mom is just a sweating away. Not good for her.

And I feed her, we watch Man Tracker. I have to change her sheets. Even though I leave a clean set in the drawer, the staff don't even bother to change them. Well I am getting very good at changing the sheets while mom is in bed. They need to be changed. Okay, they take the old one's off and put the hospital sheets on her bed. Mom has her own sheets and comforter, pillows etc..... I now can change the sheets without moving mom very much at all.

She knows what I am doing and what to expect. That I am not going to turn her, and hurt her left arm. It will be quick and easy. That is the way I make it for mom. In no time we are doing the nightly spa treatment.

Then, mom being in bed, it is easy to just spend more time with her. I am done well before the care aid comes in, so this is quality time we don't get all week. She holds my hand and we talk and laugh and have some fun.

Now it is Sunday. I brought what mom wanted to eat today, some Sushi. But she wasn't fond of the Tempura, so she had some of the served dinner as well. And a nice dessert I brought for her. I know I said I have to cut down on the desserts. Mom needs to loose some weight. I think she is. I know I have, I am down to 210 now. A few more pounds for me. Lets see what mom weighs. She seems to be fitting in her clothing better.

Anyways, after dinner, which we were done very early tonight. Before 6 pm. And the staff is not coming until 6:30. I got her changed and put a blanket on her, pulled up the chair, put the music on. Then I sat there and held her hand. This is while mom was falling asleep, listening to the music. I could see her enjoying it.

And after the staff came, mom was out. She was fussing while I was giving her the spa treatment. So I only did her face and arms tonight. That was enough for her.

By the time I finished, asleep she went. Very quickly I might add. I left early, mom was out and I still had to stop and get her drinks that were on sale. Worked for both of us.

Now since I have found out about the Parkinson's. I am changing my approach to lift. I am going on a no using my phone during the day. Unless I need to make a call.

I decided that I am only going to check my email in the morning and then leave my phone in my pocket for the day. Spend the day looking around, maybe speaking with people. I am going to do this for a week. And if that works, this is the way it is going to be from now on.

It was okay traveling out there today. But on the way home, it was tough at times. I wanted to read, check out what is happening, the news I mean't. I never did reach for the phone, but I do think this could be hard. I am use to having my phone in my hand during the trip out there and back. Looking things up, reading the news, my emails. etc..... As all of us do.

I don't listen to music though. I just don't like things in my ears. I am loosing my hearing as it is. I want to her everything. I don't like to be closed off from the outside world. And having the phone in my hands is the same thing.

I will let you know how it is going.

And I am doing this as I don't want to miss the small things in life. This Parkinson's is really bothering me. I am worried.

GOD bless and good night

Please, continue to pray for mom and myself. If you do.

Kristopher Schmuland.