Saturday, September 26, 2015

Colder

Hello again

It was fairly warm in White Rock tonight when I left and cold in Coquitlam when I got back. I had to stop and get mom some of her drinks. While they were on sale. And waiting for the bus afterwards was not fun. Others went back into the store to keep warm. The bus stop was right in front of the store. I was not impressed.

So, being Saturday, it was bath day for mom. It does bother me that she is in bed all day long. With just the radio on, no TV. That would of not made a difference as she can't see the TV anyways. There is padding on the rails and they can't find it in them to move her bed so she could see the TV.

A whole lot of brilliant people who work there. Really!

Well I fixed that. I removed one of the paddings and adjusted her bed so mom could see the TV. After I turned it on, of course. A big smile.

And, being hot, I gave mom as much to drink as she wanted. Thirsty today. Gave her a small snack before dinner. I went and warmed her dinner up. Then started to feed her. We were almost done with dinner, when they brought the served dinner to her. No thanks.

Now for awhile there, they were changing mom's sheets on Saturday. But not anymore. I am getting very good at changing the sheets while mom is in bed. I don't move her around much. Done. Fresh sheets, pillow cases. Put a nightly on her and undershirt. Mom was very relaxed by this point. With a big smile on her face.

I had to ring for the girl to come in and change mom's diaper. Casuals just don't read what is written down. This was done and then the best part of mom's night. The spa treatment. I know she looks forward to this everyday. Lotions, a massage of her feet and neck/shoulders.

I have started to give mom the spa treatment from the feet/legs upwards now. I use to start on her face. I just decided that by the time I get to her face and finish mom is now ready to sleep.

And she was. I couldn't stay as long as I wanted, because of needing to stop for her drinks. knowing I would have to wait 20 minutes for this bus. Needed to go.

I will stay later tomorrow night. I have nothing to do on my way back.

Well I am tired. So I am going to just relax and watch something. I am not even hungry tonight.

Because of my Parkinson's my right arm is getting tired easily lately. And today, I just couldn't keep things in my hands. Everything would just drop.

I need to go back to the Doctor and find out what is going on. I want to draw again. I want to learn to play the piano.

We'll see.

GOD bless and good night to all.

Kristopher Schmuland

Thursday, September 24, 2015

First day of fall

Hello again

Well I was late again today. I am just going to have to start leaving earlier. I need to be out there by 4 so I can get a few things done and then get to mom's by 4:30. Who am I kidding, I need to be out there by 3:30

When I arrived mom was a little agitated. I do understand, I have been late for a few days now, and mom expects me to be there at a certain time. She waits for me and knows what time I arrive. She likes it when I get there early, so we have time together before dinner. And I am not rushing around trying to get things ready. It also gives her more time to just relax and eat. Without feeling rushed. That is the last thing I want mom to feel. I just need mom to be relaxed at dinner so she can chew her food completely and swallow properly.

We do need to be finished by 6:30 that includes me changing her into her nightgown and putting away her clean clothing. And she just wants to relax and hold my hand while she listens to some music before the girl comes in and puts her to bed. Just relax and get comfortable and ready. She loves thins.

I am good with this. So I say again, I will be arriving early from now on.

Tomorrow I need to be out there early, as I need to get an x - ray done on my right ankle. I has been extremely sore for months and by the time the end of the day is here, I can barely walk on it. As it is now. Just killer pain. Even taking a muscle relaxer. This pain wakes me up at night.

So I give mom her nightly spa treatment and hold her hand for a bit.  Didn't do much singing this evening. To late getting there and then rushed.

As I am now. I am tired and in pain. I am depressed and upset. I want to be living out there, but nothing so far. I am just frustrated at not finding a place.

At the end of this month it will be 4 years that I have been traveling out to White Rock each and everyday. And I have been looking ever since mom moved there. Sure at first I had unrealistic expectations. But that has changed.

I have to sign off for the night

GOD bless and good night

Kris Schmuland

Tuesday, September 22, 2015

OK now

Hello again

So I arrive to find out the RN has let the doctor know that I was thinking of something that is not to toxic to mom to help her with her stiffness. so they tell me of this medication baclofen. The LPN tells me it is a drug the doctor did not want to use yet. Instead the doctor prescribed Lorazapam. And that was a NO. The LPN was trying to tell me that the side effects of Ativan Lorazapam. would likely go away after mom got use to the medication.  I needed to explain to her that I am not an idiot and I have been dealing with the different medications mom and dad were given over the years. And I have a differing of opinion then she does on what mom should be getting or what I want and don't want mom to be given. She just looked at me as if I should be listening to what she had to say.

I have and can contact the Mayo Clinic or John's Hopkins University and ask them which medication mom should be taking, without the horrendous side effects. On the bus on the way home I looked this medication up and the side effects of this drug, backlofen, are worse than that of the ativan. And we all know what my answer to this is. NO. Mom is not going to be taking this drug. I will write the two top Clinics in the world on what mom could take. I will wait until I receive an answer and than discuss this with the doctor.

This is another problem I have. I stated to the RN that I am curious of what medication mom could take. I never said to put her on anything. Just curious.

Well mom was tired today. They tell me they did not give mom anything. But I know mom and what she is like. They gave her something. But denied giving her anything.

She was eating very slowly and not swallowing properly.

But she did eat and her dessert as well.

A good thing. Not as much as I would of liked her to eat. She didn't eat what I brought her. Because she was to tired and it was taking her a very long time to chew a single piece of the dinner I brought her.

Oh yea mom was in bed when I arrived. Bowel movement and she got sick. Something is up with this. It is happening to much lately. Have to find out what and put a stop to it.

I got her nightly spa treatment done and by the time I was about to do her face and neck, mom was almost a sleep.

And after I finished and did the dishes mom was asleep. I just sang to her and kissed her good night. Packed up and left.

I am back here now and going to watch what I downloaded.

I didn't sleep well, again.

I just ask GOD if I can get four hours of straight sleep. That is all.

GOD bless and good night

Kristopher Schmuland

Monday, September 21, 2015

It has been almost a week, busy

Hello again

Wow it has almost been a week. Mom was sick again. This time,one night, mom had a coughing fit and was weasing while breathing. So I was getting very worried. It sounded awful sounding. I got the LPN to come check her out, and it sounded like there was liquid in her right lung. The RN came in and checked her out as well The same thing. So I turned my on her left side so as to let the pressure off of the right lung. This helped a bit. But I was crying. Yes I may come across as this tough guy, with an attitude, but I get very emotional when it comes to mom  People say I don't feel anything. Somewhat true. But not when it comes to mom.

Well I was worried all the way back to Coquitlam. As soon as I walked in the door I immediately phoned the home to see how mom was. No change. Now this is where I was freaking out even more. What if, something were to happen to mom, I am in Coquitlam, No buses back to White Rock at that time of night. Only a $100.00 cab fare. And I don't have that kind of money lying around. Not at all. I need to be living out there as soon as I can.

I have an add on Craigslist, but not a response. Not one. Yea a scam response, Nothing real. I even up the amount I could pay, plus helping out around the house. And nothing.

What kind of world do we live in that no one is willing to give someone, who is taking care of their dying mother, as break. Greedy people, that is who.

The next day mom was better, a bit. But breathing a little better. I was relived at that. Since then mom is fine. Eating well. Drinking lots, but restless and having some anxiety.  I am not sure what this is about. But her left arm is hurting again. Yet I am apposed to the Lorazapam being given to her. To many side effects. While she was on it, her left arm was relaxed, but to the determent to her health. So I am going to do some research. Contact the Mayo Clinic and John's Hopkins to see if they have and answer for me. There has to be something that mom can take without the horrible side effects.

Other than this mom has been doing OK.

It is the first time writing in days so I will be stopping now. It is all about mom.

GOD bless and goodnight.

Kristopher W. A, Schmuland