Hello again
It has been a very stressful few days or weeks, as the case may be. I have been trying to figure a way to pay the rest of my rent. To not become homeless. No luck so far. The PGT is just playing games and doesn't think I need help and tells me to call the ministry. For things like the rest of my rent and shoes, which are coming apart. The soles are starting to come off, as I use my feet to take the brake on and off on mom's bed. And I guess I have been using the tip of the runners. If I had glue I would fix this. But can't even afford this. Let alone anything else.
Since my mother's roommate passed away, alone, and in front of use. Mom has become very emotional. I don't blame her though. She saw this women die by herself. No one should have to pass this way. Alone, with no family around.
I will be at my mother's side 24/7 if that is what it takes. I won't let her pass away without me their for her.
Mom doesn't want to let go of my hand. Even when it is time for me to leave. This is why it is so important to move their. But no help for this.
I am trying to stay until she falls asleep, now. This is OK, I really don't mind this at all. I hold her hand and sit and wait until she falls asleep. Then quietly leave.
Mom is not eating that well. The food is not up to par. I can't afford to make her meals and she misses this. I was doing this a few times a week. She especially misses the salad I make for her. It has everything in it This I need to make for her, very soon. Have to figure out the fiances. To get mom all the cosmetics she needs and food and drinks she needs as well.
The PGT is not doing their job. He tells me to make a list of what mom needs, the price break down and the total costs.
I do this and he writes back saying to much. I give him another break down of exactly what mom needs are, with no extras listed on it. Exactly what cosmetics she needs and has run out of. What her drinks and snacks she needs. Everything.
And he tells me to do this to give him a break for the month of August. I do this and then he tells me that it is to expensive. And that for $200 a month a senior can live on for an entire month. Yes if you starve and eat mac and cheese. Which is not healthy. They already do not eat healthy and enough each month.
This is one of the things I want to start. A seniors only food bank. To make sure they eat properly each and everyday. Seniors have a hard time getting to the food banks, and allot of them are shut ins.
Now the PGT wrote back telling me that it is to much and I will have to do with X, Which is not even going to replenish her cosmetic supply. Mom is almost out of everything.
I now have to decide which cosmetics to purchase for mom. I can't get everything she needs. He won't even supply funds to purchase shampoo or body wash and hair gel. Mom get a bath once a week. And I wash her hair every other day. And I daily wash her face, back, arms and legs. Daily, I mean.
Now I am just barely hanging in their. The stress is starting to get to me. But mom needs me to be strong for her and this is what I am doing. Putting my problems a side when I arrive to see mom.
In the mean time, I have started a fund raising campaign to raise funds to purchase a van that has a lift. To be able to get mom to specialist appointments, out to see her friends, before they all pass away. And to see her city and all its new area's. The new bridges, the beach, which she so loves. ( The water) Mom has been inside mostly for the last 4 years. As I have not had a car and mom is stuck in a wheel chair.
I take mom out as much as I can. But only around the neighbour hood. I can't afford the cost of a wheel chair taxi. And I can only push mom so far. She needs to be able to get out and about. To see all she can see. To live a better life than she is living. My sister has a van. but never took or takes her anywhere.
I had a van, but the PGT took it away and then spent over $50,000 of her funds on a companion service. Which I was doing, with the van, before it was taken away from me.
But I have started this campaign to raise funds to purchase the van and have it equipt with a wheel chair lift.
It is at www.indiegogo.com/helpmomgetoutandabout
I ask you to visit this site and donate as much as you can. It is most important to mom to get out and about.
GOD bless and good night.
Kris Schmuland
This is the story of my mother and myself. About dealing with the institution, hospitals, the doctors and the PGT. How my mother feels thinks and what she wants. And how, as a care giver for her. My thoughts and feelings. How this all effects both my mother and myslelf. Searching for dignaty and respect. For legal purposes I have to write this is my opinion
Thursday, July 26, 2012
Sunday, July 22, 2012
It is hard on mom
Hello again
I write to you tonight a short blog.
It has been very hard on mom this weekend, since her roommate passed away. She saw that no one was their for this women. No family, friends. No one. And she sees that her daughters don't come to see her. The one sister comes once a week and the other never.
It is sad, And I am a basket case as well because of this.
Tonight she was very tired and mad at the same time. She thought I have something to do with my sisters not coming to see her. I told her I can't even get ahold of them. But I will try and get in touch with them and let them know to come more often. And mom said in a clear voice. NO. Of course if I can get in touch with them I would and let them know how mom needs them.
Mom needs me to be strong for her. Not a basket case as I am. It is very hard for me to see mom like this. Knowing that know one was their for her roommate and us seeing her pass away.
This is a very hard thing to take. And the fact my life is falling apart and I can't finish paying my rent.
But I need to go. I have a problem with one knee and now the other is just killing me and keeping me awake at night.
GOD bless and good night.
Kris Schmuland
I write to you tonight a short blog.
It has been very hard on mom this weekend, since her roommate passed away. She saw that no one was their for this women. No family, friends. No one. And she sees that her daughters don't come to see her. The one sister comes once a week and the other never.
It is sad, And I am a basket case as well because of this.
Tonight she was very tired and mad at the same time. She thought I have something to do with my sisters not coming to see her. I told her I can't even get ahold of them. But I will try and get in touch with them and let them know to come more often. And mom said in a clear voice. NO. Of course if I can get in touch with them I would and let them know how mom needs them.
Mom needs me to be strong for her. Not a basket case as I am. It is very hard for me to see mom like this. Knowing that know one was their for her roommate and us seeing her pass away.
This is a very hard thing to take. And the fact my life is falling apart and I can't finish paying my rent.
But I need to go. I have a problem with one knee and now the other is just killing me and keeping me awake at night.
GOD bless and good night.
Kris Schmuland
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