Friday, January 15, 2016

To much time traveling


Hello again


My phone does not work. Well it works but the touch screen does not work at all. Today the phone rang several times. I could not answer it. So the phone does not work. It will be at least three weeks before the new phone arrives.

Most of the time I have used my phone to write post, answer all. while I am on the bus. I have 3 hours of traveling each way to go and take care of my mother. And then back again. I used it in the morning, as well as my computer. So now I cannot answer or post until I get back each night.

Here in lies the problem.

By the way mom is much better now,even though she has not eaten in two weeks, except through intravenous.Now that mom is no longer getting this she needs to be fed. And because she had not eaten in a few weeks and is having problems swallowing. Mom needs to remember how to swallow again. At first it was thickened water, horrible tasting, am getting use to it. In order for me to get mom to drink the thickened water, I have to take some first and then mom will. This has gone on for a week, and now we are introducing boost. A little bit at a time. I cannot give her allot at a time. Just a teaspoon at a time and having to wait for a few minutes to give her more.

This applies to both the boost and the thickened water. So it is a slow process. This I give mom over the entire time I am with her. I have now started to arrive ;at 3 pm and leaving at 8:30 pm. but I can't get enough in her to make much of a difference.

The problem is the staff can't get mom to drink anything. I get there each day to find out that the staff could not get mom to drink anything.

But she will take it from me. Without a problem.

Now in order for mom to get what she needs to stay alive it has to be given to her all day long. I live 3 hours away by bus. I am trying to get there earlier. I now need to get there, say by 2 pm. I can't do any earlier. I don't even get home until 10:30 pm.

If I don't get enough in her she cannot survive.

It is make or break time for GOD to help me. I need to be living in White Rock in order to get mom to live. So I can be there at noon and feed mom a little at a time until I leave at night.

After all we have gone through over the last month, mom beating the odds and what the doctors expected even, only to let her go like this Starving. If I can't get enough in mom each day, and the staff can't get any in her each day. Mom will starve to death.

I can't let this happen. I am the only one who can feed her. She just won't let anyone else feed her. I pray each day that mom allows others to feed her. I pray each day and all day that GOD grants my prayer, to help me move to White Rock. To supply the finances I need to do this right away. I

I need to be living in White Rock immediately, as in the end of the month. I don't have the funds. I have not been able to do any of the PT work I was doing. I am taking care of mom or traveling to and from.

If I were to be there at noon, I would be burn't out within a week. I would need to get up very early and go to bed as soon as I get back at night. I have to unwind a bit at night.

So I ask once again to please pray that GOD grants me an answer to my prayer.

If I lived there I would be there at noon each day and stay. Feeding mom a little bit every 5 to 10 minutes or so. Until I left at 8 each night If I only had a five to ten minutes walk home each night and there in the day. I would be able to take care of mom and do what else is needed to survive.

I need to go now, very tired and I need to eat something. I haven't eaten properly in a few days.

GOD bless and good night


Kristopher Schmuland

Tuesday, January 12, 2016

Meeting number two

Hello again

Well today was a meeting in which it was the first time in almost a decade that I was in the same room as mom's daughter's.

It went better than I thought it would go. I did, however, have to put an end to a irrelevant conversation chain that one of the girls was trying to start.

Yes it did go better than I thought. Oh yea thank you miss Schmuland for reading my blog, I am glad I can entertain you. But that is the end of it.

I feel sorry for both of them. The one sister who couldn't make a decision if her life depended on it, was quiet most of the meeting or spoke in such a meek voice no one could hear her, or at least I couldn't hear her. I do need hearing aids, so that could be it. Why I couldn't hear her.

The other tried to make herself look good by saying that she knows what mom wants and she looked after dad and mom for two years. I beg to differ. It was less than that. But I let her have this considering she is just trying to make herself look good. Yet where have they been for the last decade. Not taking care of their mother. As that is what I have been doing. Daily and for hours at a time. And would never change this for the world.

Yes mom and dad did live at her home, excuse me, the home mom and dad bought for her. The home that her and her husband were to meet mom and dad at a Notary public to sign a repayment agreement Who failed to show up and left mom and dad sitting there for hours.

Real nice don't you think,

I am going to stop writing about them.


The meeting was just a re-hash of everything I have been speaking about. Feeding mom, to give her tube feeding if necessary And how to proceed from here. For weeks now.

We are going to start to add Resource 2.0 into her diet. Just like ensure. But with higher protein

Then there was this women from Fraser Health who was explaining the decision making process. And proceeded to tell me that it is the decision of the three of us. I disagreed with her and she tells me I have the act with me. Yes I have it as well and have read it. I also spoke to a lawyer concerning this matter. Who is it that I will listen too. A Fraser Health employee or an attorney who specializes in Elder law. The Fraser Health employee job is all about protectionism. Plain and simple.


Anyways I was up extremely early today and I am very tired. I had to leave my home at 9:30 am to get out to White Rock for the meeting. Then I spent the rest of the day there, hanging out with mom.

So I am going to warm up my leftovers, eat and go to bed. Another early day tomorrow.

GOD bless and good night

Please keep praying for mom.

Kristopher Schmuland

Monday, January 11, 2016

Getting better

Hello again

Well today mom is better than yesterday. This is a good thing. Mom is still only allowed thickened water. Which by the way, the staff can only get a half dozen tea spoons full , into mom. where as, when I arrive mom is waiting for me and I can get mom to drink two cartons of this water. Two tetra packs. But I have a trick. I take some and then mom will take some.

I believe they should be doing this test when I am there. That way mom will drink and swallow the water. So mom can move onto the next steps. Having smoothies

And mom is very hungry, I won't eat in front of her. I think it is rude. And when we are watching TV and commercials come on about food, mom gets upset. So I turn the channel immediately. I don't talk about food with her.Except to let her know, to pass this swallowing test and we can get onto the next step and then I can make you the Christmas dinner you missed out on.

They tell me that mom needs to be turned every two hours. I am there for 5 hours and the staff did not come into turn her once. I did complain. Nothing was done.

I did it myself. I don't want mom to get bed soars. So I have been doing this for the last week. It is casuals on right now and they really don't care. There is a certain time mom needs to be changed and that time comes and goes.

This is a hard thing on both mom and I. It was very close there, I stuck by her side. I have been spending 5 or more hours with mom everyday. I sit there, I give her a spa treatment. I sing to her. We watch TV or a movie together. We talk, and I tell her about my day. Well there is not to much to tell her about my day. I get up, get ready, walk to the loop and then spend three hours getting out there, I then spend the time with mom and pack up and walk to the loop, then another three hours coming back by bus. Routine. Not much goes on.

So tomorrow there is a family meeting. And the girls will be there in person. over 9 years since I sat in a room with them. They are strangers to me and I want to keep it that way.

I will not allow them to speak on subjects other than mom and what to do now. I really don't see the point in having this meeting. Because I don't care what the girls think or say. They are never around and have no idea who mom is now. Or anything about her, Or her decline. What she likes and doesn't like.

They still think it is the staff who makes mom's skin so beautiful. Just little old me. Again the only thing any staff member has to do, after I arrive, is to change her pad. I do everything else.

There will be allot of people at this meeting. Another set up, I feel it coming. Thank GOD I am brilliant.  I will be taking notes. I will not let this get out of control.. If need be I will call the police. NO ONE IS GOING TO TELL ME THAT IT IS TIME TO LET MOM GO. NO ONE IS GOING TO TELL ME TO STARVE MOM TO DEATH.

It will not be like the last meeting. I will take control immediately. I will not allow the girls to think they have a say. They don't, been through this before.

I will be phoning the lawyer I speak to and ask him about a few things that need to be taken care of.

OK it is late I need to be up early and out of the house. To be at Al Hogg for 1 pm. I need to be there at 12:30 pm. So 9:30 10:00 pm is when I need to leave the place where I stay.

Please pray for mom

GOD bless and good night


Kristopher Schmuland