Thursday, August 2, 2012

Mom's needs are not being met

Hello again

If you had two years to live. What would you do with the rest of your life? A bucket list for mom.

Now it is almost two weeks and mom's new roommate still has not had her area decorated and I have not seen anyone come to see her. This is sad, to say the least.

And I can't even get mom's photo's from the PGT. They still refuse to release them to me.

And now, the supervisor, Leanne Dospital and Stephen Flynn, are not releasing funds for me to get mom's cosmetics that she needs.

This spa treatment, I have been doing this for 4 years now, and daily. I find the best deals on the products. I write Bio Therm all the time. Sometimes they send me product. I push their products to the staff. Who keep saying that mom has the best skin they have seen and what are you using on her. This is in front of mom, And mom just lays back and smiles.

I let them try a little bit of it. So I think Bio Therm should be sending me samples to hand out. I will have to write them again.

But mom is out of some of her products and the PGT is not releasing funds to replenish them.

Stephen Flynn and his supervisor Leanne Dospital. They really don't like it when I mention their names on this blog.

So mom, is upset still. She tells me that my sister has taken some of her clothing again. A shirt that I left out for her one night, two weeks ago, just disappeared. I bought another one, exactly the same and it has not been seen since I brought it to her. I will give it another day, to see if it is still being labeled.

I am really depressed lately. And everyone is telling me I look tired. Bags under my eyes. Dark circles. I still have not paid the balance of last months rent. And I have no way of getting money to do this.

But I have been paying an extra $15.00 a month for rent for the two years I have lived here. That was to help pay for extra cable channels. But that never happened. And I find out that my roommates pay $500.00 a month for their share of the rent. And I pay $565.00 a month. Interesting isn't it. But the landlord seems to forget that I pay this extra amount. I will be letting them know tomorrow.

Now I did file my income taxes for the last few years, yesterday. And dropped it off after visiting mom. That is a few years worth of HST payments. Which works out to a decent amount. But it won't be done for a month or two.

I did tell the landlord that I will pay them when I receive it. I shouldn't have to, since I have been paying the extra every month.

Mom is not eating properly, and the food is not that good. I miss bringing her home cooked meals. This is one thing y'all can bring me or send me. No don't send food.

I am trying to get mom outside. Today and yesterday I got her out for a little while. She is not use to the sun yet. But this is why I have started this campaign to raise funds to purchase a van equipped with a wheel chair ramp.

www.indiegogo.com/helpgetmomoutandabout

I had trouble verifying my PayPal account. So no money could be collected. Or nobody has donated yet. I don't know. You can't donate, if I don't have a valid PayPal account. So I opened up another bank account, just for this, yesterday. And it is going to take several days to get this verified. A few steps to follow.

I guess I should of thought of this before going live with this campaign. I would of been a good idea to do this. I did under estimate the actual cost of the van with the lift installed.

I have been writing various news papers and letting them know about this campaign. This is important to mom. To get her out and see the sites that she has not seen in a while. OK many years. The van that I was using, was given to my sister to take mom out and about. But that never happened, as I said it wouldn't. So mom is inside most of the time. And when my sister does visit, she doesn't take mom outside. Come on now.

I miss taking mom out and about. This actually really gets me very upset.

I have to go now.

I need to be their for mom. She counts on me. Yes she gets upset. I don't blame her.

This is the life of our seniors. Forgotten. And left alone.

GOD bless and good night

Kris Schmuland

Tuesday, July 31, 2012

What would you do with the rest of your life.

Hello again

If you were given two years to live. What would you do with the rest of your life?

This is the question I propose to you. And this is what I write about. Concerning my mother.

Again, the average life span of someone with Alzheimer's and/Dementia is 7 - 10 years. Now mom is in year 8. I am not saying mom is dying anytime soon. But with this disease you never know when things can change. For the good or the bad. It is a disease that knows no boundaries. It attacks anyone and everyone. Well, almost. And in the next many years, more and more of our population is going to develop this disease.

We are not eating healthy enough.  This is why i is important for me to make sure mom gets extremely good meals. And the PGT is stopping me from doing this. Mom is not eating her meals at the home. I do understand this, as the food is not always very good.

I don't know how much time mom has left, but I want and need her to enjoy every bit of it. GOD forbids she passes any time soon. But wouldn't you do everything you could to enjoy what time you have left of this planet.

Well this is all I ask for my mother. To be able to see everything she has missed over the last many years. No thanks to my completely screwed up life, where I can't even get mom out and about.

I do, however feel like my life is cursed. And someone has done this to me.

I sure if this is true, they are having a good laugh right now.

Now today mom was in a bad mood. And I have been noticing that mom is in a bad mood, the days my sister comes to visit her. I asked if my sister speaks with her. Not to her. And the answer is no. Does my sister listen to mom. The answer again is no. Mom is upset that I am not their when my sister comes to visit. I just told her I don't know when she comes.

And clothing is going missing again.

Now I say unto you, help me to give mom a great life.

GOD bless and good night

Kris Schmuland



Mom and her needs

Hello again

I still have the campaign on and will have it going for another 2 months. At indiegogo.com/helpgetmomoutandabout

Now it has been very stressful, as I still have not paid the balance of this month's rent. And it is now the end of the month.

Mom has been in an OK mood lately. Very upset yesterday, and upset about no one else visiting her. My sisters, her brother, her aunt, my great aunt. etc.....

I do understand this. I see this all the time.

Now mom has a new roommate, and she has been in the room with mom for over a week now. Now this person's room has not been decorated. Her family has not even showed up to see her or make her area friendly, and decorate it. This is what it is like in the nursing homes. No one comes to visit. This women is not alone, in this. There are many, in mom's ward that have no one coming to see them. Mom sees this and is pissed off at her daughter's for not doing anything for her.

I want to take mom out and see things. To get her to specialists appointments. To get her to UBC for this trial that is about to start soon. For a new medication that is used to lesson the effects of Alzheimer's. I was informed about this by John's Hopkins University Hospital.

This is what the campaign is about. To raise funds to get a wheel chair van. To get mom out and around.

Mom is running out of some, if not all of her cosmetics and the PGT is playing god again. Telling me that I can only have a few dollars to get what mom needs. And as I have written his supervisor, that it is not even enough to get what is needed.

Mom is use to having a nightly spa treatment with certain products. Now she is almost out of many of them. She ran out of two of them tonight.  And a few more tomorrow night. Then what. Is the question I asked the supervisor in my email.

I am not sure what I should do. OK I am use to going without. But I won't stand for mom having to go without.

I guess it is off to the picket line, across the street from the PGT's office. I was planning on doing this again, anyways

So time to go, I need to get up at a decent time.


GOD bless and good night.

Kris Schmuland