Saturday, February 23, 2013

A better day for mom

Hello again

Well tonight mom ate better, I bought her a fish burger and a bacon cheese burger from McDonald's, then I stopped and got her some mushrooms and grape tomatoes. Plus cheese an avocado, a papaya and her favorite chocolates.

The smile on mom's face while she ate was worth doing this for her. Especially after last night's disappointing meal. Mom ate almost both of the burgers. I love it when mom smiles and is happy like this. She always lets me know when it is time to go for her spa treatment. She rubs her hand on my face. This is so beautiful. Mom did help herself to the tomatoes and mushrooms. Well she ate them herself. Tried with the hamburger. But unsuccessful. I put the Burger in mom's hand and she was able to eat this herself.

Full, she was, and off to bed we went. I did, have to help change the mattress on her bed. It was OK. I really need to be out their, so I can do things with her during the day. I love all the time I do get to spend with her. But It is just to feed her and get her into bed for her nightly spa treatment. Not very exciting for mom. I love it though

Now I am not doing well with the whole hearing aid thing. I have no one to speak with this about. I have told no one about this.  I actually have no one to tell. All of my friends abandoned me, as they didn't understand why I spent so much time looking after mom. So they stopped calling and well it is OK.

The only family I have is mom. And that is it.

I have been on the phone a week trying to figure out how to pay for these hearing aids. I have noticed that I am not able to hear people walking up behind me lately. This is freaky. I was proud of the fact that I could know when someone is coming up upon me.

Need help, please donate http://igg.me/at/helpmehear/x/917224 I need this extremely badly.

Need to go to bed, very stressed out about this. Especially since I have no way of paying for them. And what do I say. Do I tell people I am going deaf, loosing my hearing etc...... WHAT?

GOD bless and good night

Kris Schmuland

Friday, February 22, 2013

Just another bad dinner

Hello again

I arrived early to wash mom's hair today.. I keep getting her back wet and her clothing as well. I have only been able to keep her dry once.

I wrap her up and lean her back as far as the wheel chair will go. Not as bad as before though.

I wheeled her over for dinner, And it was the crappy cabbage rolls they serve. Mom and I both looked at the dinner and.... You could imagine. I did, however, have a mango, her papaya, her petite desserts, cheese and a avocado. I did get more sauce to cover the cabbage roll. Which mom some of it.

I am now starting to get worried. She has not been eating allot of her dinner. Not good. I don't have the money to make her home cooked meals every night. Not sure what to do.

I really need to speak with the nutritionist, about what they serve mom. Potato's every night. No pasta. White rice only. tasteless and horrible.

Mom is very tired by dinner. And yet she is only up for about 6 hours by dinner time. And then back in bed for 6:30pm. No wander she is not hungry. Always tired. Nothing to make her hungry.

I will, tomorrow, bring her a hamburger and fries. Will try this.

I need to be out their to do things with her and get her to exercise. Giving her something to do.

I got her into bed and did our nightly spa treatment. I wish mom's daughter's would actually do something for their mother. Get her up earlier. I live so dam far away.

I found the perfect place. A block away. Then this whole thing of my hearing came up

I went back to the doctor today and asked him about the seriousness of my hearing problem. He tells me that if we don't find out why this is happening, he tells me that within two years I could be completely deaf. So I am now going to see a neurologist to see what is the cause of this rapid loss of hearing. And he goes on to ask me if I got the hearing aids yet. I need them and it is important for me. To be able to hear better.

I find a place and it is almost perfect for mom and I. For me to be able to get mom over very easy and quickly. It would take me less than 10 minutes to push her there. Can't get any better than this. Or closer. Well I guess I could be across the street, instead of a block away

But then this whole thing concerning my hearing came up. I can't afford to do anything and I no longer wish to live in Coquitlam. I can't do this anymore. I no longer like the place I am in and the house is sold and the new owners have given us the proper notice.

So I started a campaign on indiegogo to help raise funds for my hearing aids.

Here is the link http://igg.me/at/helpmehear/x/917224

So I need to go now, I am very upset and I have no one to speak to about this. It is crappy to be alone. The only person I have in this world is my mother. No one else. Otherwise I am completely alone. I don't even have friends.

OK, I am busy looking after mom and I travel most of the day to get their and back. So I understand it is hard to have friendships when you have no time. I am OK with this. Mom is more important than anything.  I would just like to be closer to her.

I need to do more for her. And if I am not traveling 6 hours a day. I will have more time to have friendships and maybe date. I meet allot of women, But no time to date.

So please if you can, help me hear.

GOD bless and good night.

I really am starting to think that GOD is finding this funny. OK I did screw up a bit in my life. But this much Karma. Come on now. I don't do anything to try to make up for it. I do everything for my mother out of love and the fact mom needs me and really I need her as well.

Kris Schmuland

Thursday, February 21, 2013

A few days latter

Hello again

I arrived in White Rock a little early, so I can get to mom's and sit with her a bit and speak with one of the nurses about my concerns. The roommate issue.

Mom's roommate is nice enough, but it is the TV and light issue that is the problem. If they would do something about this then it would be OK. As in speak with her daughter's and remove the remoter from her at a certain time and turn the lights off. Keep the light string away from her etc......

I only was able to speak to someone about the bed. They like to turn her bed north and south at night. I will only except mom's bed facing east and west. It is something that I insist on. Balance with the earths movements. Sun rising in the east and setting in the west. I also explained I wanted mom's head on a slight angle 40 degree's. This helps the heart work harder, better for her circulation, rather than her head being flat. This was also solved. I hope they heard me. If not I will just do what is necessary.

Yesterday, when I arrived mom was stoned, So I went to the nurse and asked what she is getting. I found out that they gave mom a PRN  (shot) to help calm her down. It was an anti psychotic medication.  I immediately said to stop this now, mom is not to get any of these drugs period. I fought Valley view tooth and nail to get mom off these drugs and it is not going to start again. And I will do the same here.

By the miss use of these drugs, mom had a stroke, and this is why she can't speak and can't use her left arm and hand anymore. It is taking me allot of rehab to be able to get mom using her arm and hand again. Not allot, but a little. Still needs allot of work. As well as with her walking.

Again, I need to be living out their.. So I can go over their during the day and get mom up and walking.

I was near this store where I get mom her favorite desserts, I picked up some of them and a spinach pie. Mom enjoyed the pie and only had one of her desserts. Which was very strange. But ate a avocado and some of her dinner. and her chocolates.

She was very tired again, and motioned for me to give her the nightly spa treatment. I got her into bed, changed her and washed her face, arms and legs, and applied the lotions. Mom was waiting for me to massage her feet. This relaxes her and gets her ready for sleep.

We spoke about many things,while waiting for mom to get changed. When I got back from making tea, mom was so tired, that she didn't want to be fussed with. So I sang our good night song, kissed her goodnight and left. For my 3 hours tour.

Now today, before I left, I was on the phone. Try to figure out how I am going to pay for my hearing aids.

I checked out the cost. And, WoW! they are extremely expensive. Come on now. The cost for these hearing aids are as follows.

$2369.00 each (US) and $7000.00 (CDN)  pair What a difference. It doesn't matter anyways. I have no coverage. Found this out today. With the PWMB that I am on. I am not covered. I need to be on disability. Which I am not on. Been trying for a year now. Keep getting turned down. But this is normal. That one is turned down twice before they get on it.

I am in the process of applying again for this. But it will take several months to complete the application and two to three months to find out if I am approved. So my hearing is going to suffer. It is going to get worse. As it has over the last three months, or so.

The doctor where I had my hearing tested and my family doctor tell me that I must get the hearing aids or my hearing is just going to get worse.

I have no idea what to do now. The cost of the hearing aids would set me up in White Rock nicely. But I do need to hear. What to do.

It doesn't matter anyway. I don't have coverage nor do I have the money for this.

I just went into have my hearing tested to eliminate one possible reason why I have Vertigo (dizziness). Well, no inner ear infection. But walked out with the knowledge I am loosing my hearing.

Well I started a campaign on indiegogo. http://igg.me/at/helpmehear/x/917224  This is the only thing I can think of to do. I need the hearing aids, I need to move to White Rock and GOD has a great sense of humour.

Right when I find the perfect place to move too.

Well, I need to go to bed. I am stressed and freaked out. I don't have anyone to talk to about loosing my hearing.

This is when it is good to have people to speak with, instead of being alone.

GOD bless and good night

Kris Schmuland

Monday, February 18, 2013

Mom is tired again

Hello again

I arrived at mom's place early today, so I can spend more time with her. Instead of just feeding her and then getting her into bed. I wanted to sit and talk, joke around.

When I arrived, mom's hair was looking pretty hard and it seems that there was allot of hair spray in it. I walk up to her, and while telling her that I need to brush her hair. One of the staff told me that, while down getting her hair done, mom hit one of the hair dressers. So they brought her back up stairs.

This is another reason I need to be closer to mom, so I can go with her to these things and have mom remain calm. Or not hit them.

Actually, the staff can stop mom's roommate from having her TV on past 8 pm and all night long. And take the remote away from her. So mom can get some sleep. Proper sleep. Tonight, she had her TV so loud, I had to turn mom's stereo up past 12, it is never more than 7 or 8.

This is gone on long enough. What will happen is mom will become weaker and weaker and than not even want to eat. Because she is so tired. Then she dies.

And I will sue the home for negligence and undo harm. Abuse is what this is called. They just refuse to do anything about it. And it has been since this women moved in and that is about 6 months now. I told the manager then and she said that she would do something about it.

6 months latter and nothing. Take the f... in remote away. Tell her daughters that she needs to have the TV off at night so other's, mom, can get the proper sleep she needs.

Now I got mom to eat as much as she could. Most of the avocado and the papaya, a mango, most of her dinner. But she was very tired and wanted to go to bed. Towards the end, mom started to hit me again. She just wanted to go to bed.

This is Al Hoggs fault, the manager, the care aids, the social worker, the occupational worker, and the nurses. It is all their fault. They are, in my opinion, the management that is. Worthless at keeping any sort of promise. Just as the PGT is.

The both are infamous for abuse of their clients. Seniors abuse is a huge issue that needs to be addressed.

Anyway, mom was aggressive, until I started on her spa treatment and then became extremely calm after I finished her foot massage. I did extra tonight for her.

By the time I left mom was completely relaxed and ready for sleep. I told her about my day, and it was not a very good day for me. I asked her to stop hitting me in the face. But because of the disease. I know better.

She is aggressive to the one's she loves.

But today, which made me cry, mom said my name. It is the first time, mom, Mary, has clearly said my name in many years. It was so touching. I needed to cry.

But I was emotional anyways today.

I had an appointment to have my hearing tested. The doctor wanted to find out if my hearing has/had something to do with my vertigo (dizziness). As I get dizzy and fall over. So it is one of the first things to see if this is the cause of the problem.

I get their thinking that just a hearing test and maybe it is a inner ear problem that is causing my falling over.

I had the test done, when finished the doctor told me to sit down. I thought OK, I have a inner ear problem and now we can do something about this falling.

Well, to my surprise, the doctor tells me that I am loosing my hearing. I said, pardon me, as I looked at him in a stunned manner.

He repeated himself, saying that I am loosing my hearing and I need hearing aids. Again I said, pardon me, you said aids, as in plural. My right ear, correct, just for my right ear.

No, he said, both ears. I need them right away, as my hearing is getting worse.

I am, at this point, stunned. I go into the office to find out why I am falling over and getting dizzy. Not to be told that I am loosing my hearing and need hearing aids.

He tells me do I want to proceed and get the hearing aids. I say, How Much.

Now this is a huge shock for me, when he tells me the price.  $5000. - $6000. yes thousand of dollars. I don't have any kind of medical plan. And what I am on, does not cover the cost of the hearing aids.

If I were on disability, I would be covered. But I am not and I don't have that kind of money.

I now, not only need to raise money to move to White Rock, but I need to get money to purchase hearing aids. Yes, again, plural. Both ears.

Where the hell I am going to come up with $10,000.00 to move to White Rock and get the hearing aids.

This hearing loss has only happened in the last three months. I noticed when it started. What kind of crap is this.

I am a game to GOD, HE must be laughing extremely hard today. I am not.

I was on the phone, right away, trying to find out if I am covered for hearing aids. Not by social services. Then I phone to find out if fair pharmacare would cover this cost. They tell me that if anything it would be only a small percent of it. As in 20 - 30 %, if they will cover the cost.

I went into find out about my falling over, and came out finding out I am loosing my hearing, and need hearing aids.

So I was in White Rock during this. And went to see mom, right after my appointment and all the calls I made.

So I was a little bit in shock, and emotional. You see I have nobody I can talk to about this. No one at all.

Now I went to see mom, to find out she is in distress today and aggressive. When she started to hit me, I tired to explain to her that I am loosing my hearing and today, please try or not hit me. I understand the disease, but today, it hurt emotionally and the slap across the face actually hurt me physically.

I don't even have a dollar to my name right now, let alone what I need to move and get the hearing aids.

This place, I saw, yesterday, is perfect. Extremely close, and the landlord likes me and wants me to move in. I need to come up with everything I need, now, not in a week or two. I need to move. The house I live in is sold and the new owners don't want someone living downstairs. They want to rent it out to one of their relatives. My roommate has no problem  with a new place. He actually found a place and will be living by himself.

This leaves me and my falling apart body.

It has been a very different day.

I need to fix this situation for mom. Mom needs to get proper sleep, to keep healthy.

I need to go now. I need some sleep. I am very stressed out right now.

Well I am going to try crowd funding again on Indigogo. Maybe this time it might work. Maybe I could get the helf I need to get the hearing aids.

GOD Bless and good night.

Kris Schmuland.

It is not!

Hello again

So tonight I arrived to find mom in bed. Yes it was her bath day, once a week is all they bath her. This is why I wash her daily and put on lotions for her.

Yet mom did want to have dinner in bed on bath days. So it is OK. I was going to put her into bed anyway.

It is a little hard to get use to. That is feeding her in bed. A little awkward, to say the least. But I managed. This way I did not have to get mom into bed. And the care aid came in right after mom finished dinner and asked if it was a good time to change mom. Of course I said. The best time.

This way, when finished, I could just do mom's spa treatment and there is no waiting for anyone to change her. So I can just get it done and then mom does not have to be woken up after she falls asleep, because she is so relaxed. This is a good thing.

Just what I did. And mom was just so relaxed. I don't mind mom being put into bed after her bath on Sunday's. We will get use to it.

Of course it is the weekend and mom does not eat much. As it was today. But she did eat a papaya and a half. Plus some of her dinner. Half of it.

I am afraid, living so far, I will not be their the way I should be, for mom. I really do feel that I need to be their more often. It is starting to look that way. Mom is healthy and well, as happy as she can be for being stuck in a home. Not being able to go out.

This is why I need to be their, to get her out. Now that the weather is improving. Mom needs fresh air, sunshine. And I am the one to do this for her. No one else will. I am mom's servant, and I am happy with this.

Again, the evil thing called money is stopping me. I have none. I mean none. And I have serious health issues of my own I need to address. And my new doctor is in White Rock. Great.

I lost a place, worked out a great deal, but they had to rent it. I looked at a place today. A block away. Nice place, reasonable price.  Nice and clean, good space, easy to get mom in and out of.

This brings me to why I dislike the PGT so much. They wasted over $50,000.00 on a companion service, they took the van away from me. And gave it to one of mom's daughters. ( To take mom out, and this never happened, as I said it wouldn't)

And they have made multiple promises to me, and broke all of them.

I am so upset today, I found the perfect place. Yes better than the one, I worked out a deal for. And even closer. Again I have nothing and no money.

Everything takes money.

I pray and pray. I ask and ask GOD for help. And nothing. I go without food all the time. I would rather get mom good meals and healthy foods than get things for myself.

I just need a real miracle right now. And right away.

I am pissed and not doing well. I am slowly feeling I am getting worse. Maybe it is just the stress. I need serious help this week. I have to make a decision now, not latter.

GOD bless and good night

Kris Schmuland