Hello again
Let me tell you the hard facts. If I don't feed mom she will die. It is not as if the day staff are trying at all to get anything into mom. I see it. I am not stupid. They even have said to me, at breakfast and lunch. Well, that is not how is to be. It is suppose to be 1 tbs every 5 minutes. So not doing as directed.
It is I who is getting the most thickened water and thickened Resource, Just like boost but with more nutritional value in it.
I am getting mom on a feeding Schedule.
I am arriving at 2:00 pm now and leaving at 8:00 pm. As soon as I arrive I give mom as much as she will take. 4 or 5 tsp of resource and 8 tsp of thickened water. I let mom rest a while and then, an hour or so, we do this again.
Today it was 5 feedings, yesterday 4 feedings.
In between, mom has a rest. I just sit there holding her hand.
If this is what it takes to keep mom alive and healthy, so be it. Than this is what I will do.
Someone even said to me, it is like I have a noose tied around my neck. Not so. I am in this for the long haul and won't give up.
It is not mom's time to die. I know this. I feel this. So it is so.
GOD never said this was going to be easy. GOD said it what I am suppose to be doing.
Taking care of my loved one. Honour your mother and father. What that means is to be there for them, no matter what.
I will do whatever it takes to make sure mom is kept alive. Whatever it takes.
Yes I do understand this is a slow process, and mom will eventually eat food again. I say a month from now, I will be able to get real food into mom. Maybe even less time.
I know what all the staff are saying,. But guess what it is not them who I listen too. I do understand their opinion. But they need to understand my belief.
I saw the miracle already. That is how I know, mom will be OK.
All of this is part of what is needed to be done to protect our loved one's. Yes the doctors have their opinion, but listen to what your gut has to say, listen to your heart.
We don't have to listen to everything the doctors say. It is their opinion. And that is all it is. They don't know for sure. All they can do is give you their opinion, based on past experiences.
This I do know.
NO ONE KNOWS WHAT TOMORROW WILL BRING, OR THE NEXT DAY, OR THE NEXT MONTH. IT IS NONE OF OUR BUSINESS. ONLY GOD KNOWS.
WE CANNOT PREDICT THE FUTURE
ALL WE KNOW IS THE NOW.
Yet I can say that mom is going to be fine.
My biggest problem is that I can't be there for noon each day. I would burn out within a week. It is the traveling. 3 hours each way.
This is why it is so important for me to be living in White Rock.
Please pray for this to happen. It is for my mother's sake. I am there at 2 but I really need to be there at noon each day.
If you can help in anyway, drop me a line. Mom really needs for me to be there at noon each day. To get here better. And the only way I can do that is to be living out there. .
GOD bless and good night.
Kristopher Schmuland
This is the story of my mother and myself. About dealing with the institution, hospitals, the doctors and the PGT. How my mother feels thinks and what she wants. And how, as a care giver for her. My thoughts and feelings. How this all effects both my mother and myslelf. Searching for dignaty and respect. For legal purposes I have to write this is my opinion
Thursday, January 21, 2016
Monday, January 18, 2016
Even better I think, no I know.
Hello again
It is hard to write, as I am very tired when I get back to Coquitlam. 10:30 at night. I am leaving earlier, so I can get there for 2 pm.
If I were living out there, I would be there at noon. But I have 3 hours of traveling to do each way. It is just getting there earlier is my goal.
I need too. It is a life or death decision for me. Get there at my normal time and feed mom a little bit or get there earlier and feed mom allot more.
Or do as everyone else is doing and just don't give a crap....
Mom will not take anything from anyone else. They try, I think they do anyways, and mom just won't let them give her anything. As soon as I arrive, mom is thirsty and wants her thickened water and some of the thickened boost. It is resource or something like that, but I just say boost to mom. She won't take the boost unless it is thickened. It is more like food this way. Followed by the thickened water.
I am completely use to the thickened water now. And it actually tastes not to bad. I still have to take a spoon full for mom to take it. If this is the only way to get mom to drink it, than so be it. That is just what I will do and have been doing.
I arrived at 2:30 today, as I had to get my phone off to Ontario to get fixed. OK Sony is just going to replace it. But I have to wait for at least two weeks for the phone to come back to me. So I go without a phone, oh well. Life goes on. The only worry for me is if something were to happen to mom and they cannot get a hold of me. I wouldn't find out until I get to White Rock.
Mom is doing better. She is sleeping allot though. After I feed her she holds my hand and has a nap. Then a little while later she wakes up and I feed her some more. And this goes on all the while I am there with her.
This is something that needs to be done, or my mother dies. Simple as that. OK I get up an extra hour earlier. Getting back so late and then having to have something to eat and just relax a little before going to sleep.
This has been my days. When I am just sitting with mom, holding her hand, while she is napping, I pray and I pray to GOD that HE helps me find a place in White Rock and I move there right away.
I want to live there so I can be at the home by noon each day. I need to be able to feed mom more often during the day. What I do now, yes it is of a benefit, but I need to feed mom more often. She needs more of the boost and the water to survive.
I am doing what I can. I don't even go to sleep until 2 am. By the time I make something to eat and actually eat it, Now it is midnight or 12:30 when I am done. Let alone doing anything else. As in type this blog. I will keep up with this no matter what.
So please continue to pray that GOD helps me find a place that I can afford. So I can be closer to mom.This would help mom out greatly.
GOD bless and good night.
Kris Schmuland.
It is hard to write, as I am very tired when I get back to Coquitlam. 10:30 at night. I am leaving earlier, so I can get there for 2 pm.
If I were living out there, I would be there at noon. But I have 3 hours of traveling to do each way. It is just getting there earlier is my goal.
I need too. It is a life or death decision for me. Get there at my normal time and feed mom a little bit or get there earlier and feed mom allot more.
Or do as everyone else is doing and just don't give a crap....
Mom will not take anything from anyone else. They try, I think they do anyways, and mom just won't let them give her anything. As soon as I arrive, mom is thirsty and wants her thickened water and some of the thickened boost. It is resource or something like that, but I just say boost to mom. She won't take the boost unless it is thickened. It is more like food this way. Followed by the thickened water.
I am completely use to the thickened water now. And it actually tastes not to bad. I still have to take a spoon full for mom to take it. If this is the only way to get mom to drink it, than so be it. That is just what I will do and have been doing.
I arrived at 2:30 today, as I had to get my phone off to Ontario to get fixed. OK Sony is just going to replace it. But I have to wait for at least two weeks for the phone to come back to me. So I go without a phone, oh well. Life goes on. The only worry for me is if something were to happen to mom and they cannot get a hold of me. I wouldn't find out until I get to White Rock.
Mom is doing better. She is sleeping allot though. After I feed her she holds my hand and has a nap. Then a little while later she wakes up and I feed her some more. And this goes on all the while I am there with her.
This is something that needs to be done, or my mother dies. Simple as that. OK I get up an extra hour earlier. Getting back so late and then having to have something to eat and just relax a little before going to sleep.
This has been my days. When I am just sitting with mom, holding her hand, while she is napping, I pray and I pray to GOD that HE helps me find a place in White Rock and I move there right away.
I want to live there so I can be at the home by noon each day. I need to be able to feed mom more often during the day. What I do now, yes it is of a benefit, but I need to feed mom more often. She needs more of the boost and the water to survive.
I am doing what I can. I don't even go to sleep until 2 am. By the time I make something to eat and actually eat it, Now it is midnight or 12:30 when I am done. Let alone doing anything else. As in type this blog. I will keep up with this no matter what.
So please continue to pray that GOD helps me find a place that I can afford. So I can be closer to mom.This would help mom out greatly.
GOD bless and good night.
Kris Schmuland.
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