Thursday, January 28, 2016

They are doing it again

Hello again

So it has been a few days since my last blog, I have been really busy. I leave my place at 11 am and get back at 11 pm Then to try to eat something. If I have to cook I am not eating until 1 am. Of course one is not going to go to bed right after they have eaten. Now it is 3 am when I am starting to fall asleep. Doesn't take long for this to happen. I fall asleep to a show, part way through. I watch the rest in the morning while getting ready. Then off again. And if I have to do anything while on my way, I need to leave even earlier.All this so I can get there by two pm.

I really just want to get to mom's by noon. I have had an add on Craigslist for 3 years and nothing I can afford. I have even placed it under Shared accommodations. Yes they want $600 to share a place. But I digress, I have already mentioned this numerous times.

Now to mom.

The last several days mom has been taking more and more of the thickened water and thickened Resource. Each day a little bit more. Yes there are days when it is less she takes. But overall it has been good,

Until today.

It is an off day for her. She took some of the thickened water and Resource, but apparently early this after noon mom was very tired. And not responsive, just fast asleep.

So when I arrive they all come running in to tell me my mother has taken a turn for the worse. She is having an off day. Yes there is flem in her throat, and she is breathing with a bit of a gurgle. But this is just that. They tell me she has a few days left, that is it, she has taken a turn for the worse. I then tell them that, in our road to recovery, we have good days and bad days. We take 5 steps forward and two back. Today is an off day, we don't know what tomorrow will bring and it is just your opinion on what is happening. GOD only knows what is going to happen. They tell me that she is not taking anything, I say, As usual, the staff have a hard time feeding her, but when I arrive, mom takes allot through out the night. So again an off day, and we will see what tomorrow brings, Mom will most likely be very hungry.

But they told me to prepare myself, that I have done everything I could. That no one has dedicated the time you put in, to their loved one's. IT IS MY DUTY, IT IS WHAT I AM TO BE DOING.

I have not done enough. I have not given her real food. Only then and then only, will I be able to say I have done everything. I have to see if she will eat food and swallow it. Well she swallows the thickened water and thickened Resource, so why would she not be able to swallow food. Pureed. No reason that I know of. BUT I MUST TRY!

I did end up giving mom something and of course she took it from me. Of course she did. She was responsive for me, as usual and we talked. I held her hand and when she was resting, all I did was pray, over and over again that GOD heals her. I know her will

But mom is getting very thin. And of course she is. Only getting boost and thickened water. And the amount she needs of this, none of us would be able to consume in a day. Twelve tettra packs of thickened water and 6 tettra packs of Resource. Not a chance any of us could take this. This I am very worried about.

What mom needs is food, real food. this is the only way she will get well. And I am going to be shouting this to the roof tops tomorrow. I will be demanding food for her. Pureed, but food.

They are stressing me out, Freaking me out and upsetting me greatly. I was in tears a few times. They tell me they are there to support me. Not a chance that this is true. They now have done this 3 times to me. She is dying, only a few days left. I say that is just your opinion and only GOD knows.

THEY ARE NO GOD. ONLY HE KNOWS AND I KNOW GOD WILL LET ME KNOW.

Now my phone, they tried to call me today, but we all know that Sony is holding my phone hostage. And the home trying to get a hold of me and not having a phone, is really pissing me off. I have spent almost two weeks telling Sony that I have a warranty and I am not paying to have it repaired. And yesterday the tech person was extremely rude to me, after telling me I have to pay to have it repaired, then again I say I am not paying for something when I have a  warranty. He then proceeds to tell me that if you don't pay we are going to hold your phone until you pay. today I call and the customer service tells me this is escalating and Sony is going to replace it with a new phone. Escalating, I will now be showing them what the word escalating is about.  I ask when, I don't have that information. Tomorrow, next week, a month a year. I can't tell you when it will happen. So I am still without a phone.

I really need to be living out there. This is where I need help. If I had any decent amount of money I would be out there already.

Please pray for mom to be healed. Pray that GOD provides the miracle for this to happen and for me to find a place for March 1, 2016. I will keep mom alive. I have asked her if she is ready to die and her answer was NO!

Kris Schmuland

Sunday, January 24, 2016

Slowly but surely.

Hello again

Mom is OK, she could be allot better. I know she needs to eat or drink more of the resource/boost and more water.

These are 12 hours days for me now. I arrive at 2 pm and leave at 8 pm. Then 3 hours each way, by public transit. The bus and skytrain. This is what we call our subway. For all the people who have and still do say. "For those of us that work" 12 hours baby. If that is not work, what is.

I can surely tell you that not one of my so called, family members, can do what I am doing. They just don't have it in them. I can see it. Oh wait, I never see them. I just know it. Hows that for accuracy

So walk a mile in my shoes. See if after one week you are not burnt out. And remember, I have not missed a single day in over 4 1/2 years. I was doing 9 hour days. Now mom needs me to be there more often, longer. So she can get something in her. It appears that I am the only one who can actually get mom to eat/drink.

It is not as if the staff are doing anything. Feeding her, not, changing her position, not. These are the things that the staff are to do. Period.

The first thing I do when I arrive is to start by feeding mom, for the first of three or four feedings. This is the only thing I can all it.

They have put a sign up to give mom a tbs every 5 minutes. This just won't work, so I am trying to give  mom something every hours or so. This way mom can get some nutrition into her and have a rest/break. Mom just usually sleeps for her break. And I get mom her spa treatment in around 4:30 or so.

I want to be there longer. But I need time to myself. As it is, when I arrive home I check my email, download what I want to watch that night. Write on this blog, as I can. And all the other social media I am connected to. Facebook, Twitter etc....

I want to be there for noon each day. So I can get more nutrition into mom. But the only way I can do that is to be living in White Rock. I really don't even have time to look for a place. I am looking on Craigslist. But they want around $600 just for shared accommodations. Come on. 6 bills to live with someone and have to put up with their rules. I don't think so.

I have no problem being there for mom by 2 pm and really do want to be there for noon.

Today I was thinking, yes I was thinking. That there is not a single person on the face of this planet who has helped me and my mother in anyway what so ever. GOD is the one who is helping me. No one else. Even though I have asked many times for help. Help for me to get out to White Rock. Financial help that is. I have even tried crowdfunding and nothing.

I just want to look after my mother, the way she deserves to be looked after. Someone to be there to feed her through out the day.

This is what I do. I feed mom, hold her hand while she is resting, then feed her again and hold her hand. etc....... I talked to her, sing to her, put on a movie, which I bring with me.

Yes I live poorly, I have chosen this path. It is OK, I get by, most of the time. But there have been many occasions which I have been without for weeks. But I am still on the bus each and everyday. I don't complain about this. This is what is necessary to make sure mom is healthy. To keep her alive as she is meant to be. It is not mom's time. I would know this. And I don't feel that this is her time. I am never wrong with my intuition.

Mom is, otherwise doing well. She is getting better each and everyday. No thanks to anyone. They have gotten her up a few times. I have washed and styled her hair three times in the last week and a bit. I keep fresh sheets on her bed. The one's she really likes.

It is 6 hours that I just sit beside her each day. That is the day.

I am applying to this one place,again, now that I am getting close to there age requirement of 55. I applied there last year and was told I was not old enough. Maybe this time will be the lucky one. It is a 15 minute walk to mom's

Please pray that I get accepted.

The only problem I have right now, with this. Is I don't have a phone right now. I am still having to pay for my monthly bill.

Sony is holding my phone hostage. I was waiting for a bus to come back to Coquitlam one night and someone ran by me, to catch another bus, and bumped me. My phone went flying out of my hands and down to the ground it went. I picked it up and saw the screen was cracked. I tried it and the touch screen did not work. Oh wait I said to myself. I have a glass screen protector on it. I thought that if I just remove the screen protector, the phone will work. It turned out that there was nothing wrong with the screen protector. It was the phones screen that was cracked.

I phone Sony the next morning. They told me there would be a charge. I stopped them and said I have the extended warranty. OK they tell me, it is covered. Now we will send you instructions on how to send the phone in. So I asked several times if they were sure it was covered. And every time I was told yes it was.

I packed it, walked over to the purulator store and sent it off. So a few days later I get an email from the company that repairs Sony's products. I was excited. Here they are, being very diligent and expected the email to tell me that they are sending a new phone to me, but instead I get a invoice telling me that I need to pay them $250. plus tax to have this repaired. And if I don't want it repaired I will have to pay them a $25. plus tax to get my phone back. And it may or not be in pieces.

I use my upstairs neighbours phone and call the repair centre.They tell me that it is not covered by the  warranty and this is what I need to pay. They also tell me that this is what Sony does. That my warranty is no good. It ran out last November. I was told when I bought the phone that it was an extended warranty. If I knew this I would of purchased another year. But Sony told me it was covered.

I phoned Sony right away, after I hung up with the repair centre. I spoke with a pleasant girl, she was looking at my file and tells me she does not know why this is going on and would send everything to her supervisor. That was last week and they tell me it will be 24 to 48 hours before they call me back. Wait I say, I don't have a phone. They will have to email me.

So I wait. I will be calling them back in the morning. I need my phone, I have calls to make, the application is going in this week. And no one can get a hold of me. Not even the home, if something should happen to mom. I am freaking out. To say the least.

After that rant, I need to get back to what is important. MOM.

Now I know mom needs me to be there for noon. This is the only way she is going to get better. I am doing the best as I can. I don't want to burn out or get sick. I won't get sick as I don't get sick.Ever.

Now I don't have a phone I am reading the bible on my way and started to read this book I have been wanting to read. I pray all the time. While mom is resting I am praying. Constantly praying to GOD, that HE helps me get a place right away. This would will help both mom and I. I could be there at noon. If I only had to walk 15 minutes each way. Then get home by 8:15. Plenty of time to do all sorts of things and get to bed earlier than I do now. By the time I eat and just relax for a bit, I am getting to bed at 2 am. Not falling asleep right away either. And then I wake up at 6. Yes it is a weird thing, but each night I wake up at six. Then back to sleep for a few more hours.

I have to go now. I need to eat something.

Please pray for mom and myself. We need all the help that anyone can give. Even if is just your prayers. Thank you

GOD bless you and good night.

Kristopher Schmuland