Hello again
Well I have never wanted flowers to die faster than the one's I got for mom. They seem to live on and on. It is because I am allergic to them, that they seem to know and are staying alive to torture me.
I can't just throw them away. Hey mom I am throwing away your flowers. That conversation is not going to happen. I will just put up with it. They can't last forever. You never know LOL
It was the night to wash mom's hair again. I wash it every other day.
I just want to now give a recap of how my evening goes.
I arrive between 4:30 to 4:45 pm.
The first thing I do is get mom over to her spot for dinner, or I go and get her plates, two wet wash clothes plus a couple of wet paper towels.( If mom is already in her spot)
I then get all of her fruit, cheese and other items from the fridge in the family kitchen
I wipe her mouth, as the nurses, who give mom her medication, do not do this and the medication just drys on her mouth.
I then give her something to drink. Some of her coke, juice and water she loves. Mary is always very thirsty when I arrive.
I get everything out onto the table. Cut her avocado, some cheese, place the crackers out on the plate. Open up the smoothie. And put the dinner that she gets at the home, on a separate plate, one of her plates.
I then feed her dinner, give her drinks. Plus I then cut up her papaya and kiwi for her dessert.
At this point mom is full and I take her to her bedroom.
I get her into her nightgown. And put her into bed.
I get her pants off of her, so she is ready for changing.
I brush her teeth and give her something to rinse her mouth out with.
I then wash her face, rise it off and then apply lip balm, and lotion to her face.
I wash her arms and apply lotion on them, as well, plus put on hand and nail lotion.
I give her something to drink and a snack
We now wait for the staff to come in and change mom. Before I wash her legs and massage her legs and apply lotion to them while massaging them. I hold her hand. Mom is completely relaxed and falling asleep.
After this mom is thirsty again.
All the while I sing to her, we chat about anything and everything. We talk. Mom, may not be able to vocalize what she wants to say, But she can sure communicate very effectively.
It is now 7:30 to 8:00 pm. and I sing our good night song. Give mom hugs and kisses. And I will just hold her hand until she falls asleep.
This is most of what I do on a daily basis for mom. Every single day. Mom expects this and looks forward to this. I am so glad that mom loves to hold my hand.
It is for warmth, security, love and compassion that she holds my hand. And I have no problem with this at all.
I do so much more than this for mom, To make her comfortable, to make her relaxed. I sing to her, I play dinner music for her. Then when we get into her room, I put on her music to sleep too. Diana Krall.
When I leave I turn her stereo on,which is filled with Diana Krall and this she listens to all night long.
This is my day. Besides the 7 hours of traveling that I do.
This is what I do for my mother, to make sure she knows someone loves her and cares for her and that she knows that I will be their all the time for her.
This is my job, and I am happy to be doing this for mom.
I thought about it. Things have worked out the way they are to be. If I was married, there is no way I would be able to spend this time with mom. My wife would never allow this much time I spend with mom.
All things are as they were meant to be.
As GOD arranged it.
So I need to go to bed now.
GOD bless and good night
I hope you now have an understanding of what I do each and everyday. I am busy from the moment I get their until I leave.
Kris Schmuland
This is the story of my mother and myself. About dealing with the institution, hospitals, the doctors and the PGT. How my mother feels thinks and what she wants. And how, as a care giver for her. My thoughts and feelings. How this all effects both my mother and myslelf. Searching for dignaty and respect. For legal purposes I have to write this is my opinion
Saturday, June 22, 2013
Thursday, June 20, 2013
A new day
Hello again
The last several days my email (Gmail) has been down and I have not been able to answer mail from the PGT as well as a friend who is also involved with the PGT in the same manner as I with my mother and they have the same case manager. There are also the same issues, which we both face, with regards to the PGT and this case manager.
Myself, I am tired of the PGT making promises and then deny that they made them. I would of been in White Rock. living by myself, if the PGT lived up to what statements they, it, makes.
The travelling is starting to wear on me. It is because I just what to be living their, in my own place. It pisses me off that I am only a few hundred dollars,each month, from doing this. Yes a few hundred dollars is not allot of money, But to someone who can't even afford to eat through out the month, and all month long. A few hundred dollars is allot of cash. And it is only a few hundred dollars. OK, probably $350.00 more than I actually have each month. This really pisses me off. And all the wasted money that the PGT takes each and every month from my mother's account and all the thousands of dollars they have already taken from my mother and parents. And for what. They don't do as they say or even what the PGT mandate states.
Anyway. I bought mom some flowers and I am allergic to them. I get a headache once I get mom in her room. I get nauseous, a little aggravated, especially since mom's roommate does not stop talking and she has her TV on very loud. No matter how much I complain, nothing seems to be done about it.
I don't want to turn mom's stereo up to much, as mom does not like it up to high. It should be at a soft volume. Just enough for mom to hear it and not to loud for it to disturb mom's sleep.
Over all mom has been doing OK lately. It is funny, OK not really. But as soon as I get their, mom does not want anything to do with anyone else. It is our time and I am OK with this. This is why it bothers mom when her roommate keeps talking to me. I don't blame her.
Well since I purchased flowers for mom, I have been very tired at night and I have not even been working on the computer much at all. Except to watch some TV shows that I have downloaded.
So GOD bless and good night
Kris Schmuland
The last several days my email (Gmail) has been down and I have not been able to answer mail from the PGT as well as a friend who is also involved with the PGT in the same manner as I with my mother and they have the same case manager. There are also the same issues, which we both face, with regards to the PGT and this case manager.
Myself, I am tired of the PGT making promises and then deny that they made them. I would of been in White Rock. living by myself, if the PGT lived up to what statements they, it, makes.
The travelling is starting to wear on me. It is because I just what to be living their, in my own place. It pisses me off that I am only a few hundred dollars,each month, from doing this. Yes a few hundred dollars is not allot of money, But to someone who can't even afford to eat through out the month, and all month long. A few hundred dollars is allot of cash. And it is only a few hundred dollars. OK, probably $350.00 more than I actually have each month. This really pisses me off. And all the wasted money that the PGT takes each and every month from my mother's account and all the thousands of dollars they have already taken from my mother and parents. And for what. They don't do as they say or even what the PGT mandate states.
Anyway. I bought mom some flowers and I am allergic to them. I get a headache once I get mom in her room. I get nauseous, a little aggravated, especially since mom's roommate does not stop talking and she has her TV on very loud. No matter how much I complain, nothing seems to be done about it.
I don't want to turn mom's stereo up to much, as mom does not like it up to high. It should be at a soft volume. Just enough for mom to hear it and not to loud for it to disturb mom's sleep.
Over all mom has been doing OK lately. It is funny, OK not really. But as soon as I get their, mom does not want anything to do with anyone else. It is our time and I am OK with this. This is why it bothers mom when her roommate keeps talking to me. I don't blame her.
Well since I purchased flowers for mom, I have been very tired at night and I have not even been working on the computer much at all. Except to watch some TV shows that I have downloaded.
So GOD bless and good night
Kris Schmuland
Monday, June 17, 2013
It's Sunday
Hello again
So today is Mary's, Mom, bath day. Which means they put her into bed right afterwards. And by the time I get their mom is extremely hot and sweaty. So I pull all of the covers off of her. Except the sheet.
And immediately get her drinks out for her. But tonight mom was frustrated. She just wanted to hold my hand and relax, but she also needed to eat. I had to put a towel on top of her, to keep the bed clean, but she kept trying to take the towel off.
It was hard to feed her, as well. She kept grabbing my hand, pushing my hand away. Trying to hit me.
Mom also kept leaning over to the side of the bed. And this made it difficult to feed her. I had to keep sitting her up, so everything would not go everywhere. It was difficult to give mom and drink or her smoothie when she was leaning over like she was. And every time I sat her up, she would fight with me and then lean back toward the edge of the bed again.
I also did this so Mom would not fall out of the bed. Mom was hungry, but she wasn't. I am not a fan of them putting her into the bed after her bath. Especially now it is to become summer. To hot. And very difficult to feed her.
On top of this her roommate had her TV on very loud. And kept wanting to talk with me. But mom is very possessive of me when I get their. She wants me to spend my time with her and her only. On top of me trying to feed mom, I needed to find a way of letting mom's roommate understand that I am their for my mother and to spend time with her.
It really didn't make much of a difference. She kept talking anyways. So I had to close the curtain between them.
It was not until I finished feeding mom her meal and got to the fruit, that mom started to calm down. She was very upset and fidgety.
For me, I am still dealing with the theft of my bag, and my rent being taken with the bag. As mentioned, I could not leave it at home, because of the alcoholic chick, as I did not want it to be stolen. So I couldn't leave anything of value at home. And all of my ID being gone.
Plus dealing with my hearing loss and the vertigo. Last week, beside going to see mom, was a write off. All I could do was go see mom and then come home and go straight to bed. It is a little better this week so far. OK it is only the beginning of the week. Let us see how it goes.
Anyways, I am done for today. I have to get up early and work on getting my rent covered for this month.
You know, the only thing I really wish for, is to find a decent place in White Rock. The money to cover the rest of the rent that I can't afford at this time, for 6 months. I really don't care about furniture. It is easy to get. I think. Free of course. It doesn't matter to me if it is used. I just need a TV. And the internet. Cable, it doesn't matter to me if I have cable or not.
I keep an add up on Craigslist. And not much.
So GOD bless and good night
Kris Schmuland.
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