This is the story of my mother and myself. About dealing with the institution, hospitals, the doctors and the PGT. How my mother feels thinks and what she wants. And how, as a care giver for her. My thoughts and feelings. How this all effects both my mother and myslelf. Searching for dignaty and respect. For legal purposes I have to write this is my opinion
Thursday, January 7, 2016
Better
Mom is looking better and acting better. She is hungry though, and I can only give her thickened water.
It is weird though, that mom won't take the water from the staff, but I have absolutely no problem with mom taking the water from me. Tonight mom had two containers of the water.
I don't know why this is. When I arrived mom was very thirsty. Waiting for me.
I wish she would of taken the water from the staff today. I should say from the OT, as mom was reassessed today. And of course she is still only allowed the thickened water, because mom would not drink for her/him.
I am reminding mom to swallow and to drink for the staff. The more she drinks the better her swallowing will become. And then we can move onto something else. Like a smoothie.
Mom was bright and talkative when I arrived. And the first thing I did was give her something to drink then the spa treatment.
Well someone from there is reading this blog. I don't have any problem with it at all. After all this is only my opinion on how I see things and how things are unfolding as we move along with mom's recovery.
So go ahead and read this blog. And if you want to discuss anything, feel free to contact me. Understand this. I don't care if you read it. I have nothing to hide.
I am honest and upfront and truthful about everything I see and feel. And this is the way it has always been. I see things differently than any staff member. They work for Fraser Health and have to defend them. Or else loose there job.
I spoke with the manager today and expressed my disappointment with the threatening letter. I am not afraid of Fraser Health as I was not and continue to be not afraid of the PGT.
I have had success with confronting both the PGT and Fraser Health, as well as Riverview Hospital. This is where mom was for over 3 years. A Mental Health facility. And I needed to be on top of everything. And I fought for mom. And I will continue to fight for mom.
All I want is mom to get well. I know it is not her time to go. I know it. I have been told this.
I am a believer in GOD and Jesus Christ. I know the exact moment when mom was healed. I saw it first hand. Yes it is going to take time to get mom back to where she was. Or close to it anyways.
I am the one there and I am the one who takes care of my mother. There is not a living soul who takes better care of my mother than I.
It is a pity that they only see death. As I mentioned about the meeting with the director and my stating to her, that it is a pattern within the health care system, you just say, don't feed her or she will get food or anything else in her lungs. She tells me that she is sorry I feel that way. I have no feelings on this at all. It is a FACT. So no feeling are involved with it.
The other day, my cousin was in and she even states that I am a kind and gentle person who is honest and has nothing to hide. I am upfront and don't hold back. I never thought any family member thought anything like that about me.
This one statement from her has changed my attitude about myself. I am looking at myself differently. I feel better.
I realized, finally, I am a very forthcoming. I can be proud of myself. I am not doing any of this to get something from it. I am doing this, taking care of my mother because it is the right thing to do.
I feel that it is GOD walks with me through this journey. He is the one who is Healing mom. HE guides me throughout each day. Lets me know what I should be doing.
I am only concerned that mom is taken care of properly and that everyone at Al Hogg does everything to keep her alive. Or I will, regardless of the threatening letter.
I will do whatever it takes to make sure mom gets well. I mean everything. I am prepared to take this on and do what I have to.
I have been doing this for a very long time and I have plenty of contacts, to give me advice, if I need it. I know what I am doing. And how to go about doing what is necessary.
OK now it is late and I need to get to bed. Well after I watch a couple of things.
Please pray for mom.
GOD bless and good night
Kristopher Schmuland
Tuesday, January 5, 2016
It seems like.....................................
Hello again
Mom is getting better day by day. I see it, even though everyone else is giving me the same old crap they give everyone. I have heard it from others to many times to remember. What the staff and management of all care homes do and say to the family and patients.
Do not feed her, she might get food down into her lungs, Then she will choke to death, Excuse me, aspirate is the proper word they use. Essentially telling everyone that they believe it is time to let your loved one starve to death. That is what they do in all of these care homes. They let the patients starve to death. Though the patient might be hungry or thirsty. They just don't give a crap. " This is what we do, and they go peacefully.
NO THEY DON'T. THEY ARE STARVED TO DEATH.
Mom is hungry and thirsty.
The doctor said mom can have thickened water. So yesterday when I arrived I saw the sign, that mom can have thickened water. I thought, if she can have thickened water, the smoothie I make is even thicker. So I gave mom 6 teaspoons full. Each teaspoon, mom swallowed it and enjoyed it.
But then the universe came in and demanded that I don't give her anything but thickened water. Because she might, might, get it in her lungs and she could aspirate. Choke or start to cough. And die.
But what is it they are trying to do. It is starve my mother to death.
She already has not eaten any food for over a week. But Sunday December 27, 2015, mom ate 15 bites of food and swallowed every bite. Without a problem. But on December 28, 2015 the doctor comes in and pulls me aside and tells me not to feed mom, because... wait for it................ She might get food into her lungs and aspirate.. Even though mom ate and swallowed her food fine the night before. I was writing it down on the calender, exactly what mom was eating.
I started to complain that mom was ill at the beginning of December. It was not until I threatened to take her to emergency that anything was done. It was the very next day they did something about it. X-rays on her lungs and tested her for an infection. That is when they found out mom had a bladder infection. Almost to late. .
I listened and have only been giving her this water. And mom does not like it. Well I tried it and she is right it tastes horrible. But to get mom to take it, I am taking a teaspoon first and then mom gets one. So if I am drinking this horrid water, so mom will drink it.
So today, I was asked to come into the family room for a meeting and Lisa, the manager, tells me that the director will be joining us. I was in the middle of giving mom a spa treatment, so I was not just going to stop what I was doing. Lisa did say for me to take my time, and I did just that. Took my every so lovely sweet time, finishing mom' s spa treatment up.
The meeting went like this. The staff have been telling us that you are feeding your mother, they are finding food in her mouth. Each day and everyday. I expressed to them I have not fed mom any food at all, I have not made or bought any kind of food for her. And I do even eat in front of her, or drink anything but my tea. None of her regular beverages, at all. So I have no idea were the food came from or if what they are saying is actually the truth. Which of course is total BULLSHIT!
Then they go onto tell me not to feed mom anything but thickened water. That they follow the doctors orders. And I have to do the same. Or again,.... wait for it.......... Mom might get food in her lungs and aspirate. A common theme is it not. Again they say this thousands of times a year, In other words we are going to starve your mother to death. The exact meaning.
I even said to them, " What do you think I am, an idiot" I have heard you say this to me a dozen times. I hear you. But are you hearing me. You do not get to decide when and if my mother dies. You do not have that right. There is only one who makes that decision. And that is GOD and only GOD. Not you, not my sisters, not the staff. ONLY GOD MAKES THIS DECISION
The director proceeds to give me a letter. And tells me that if I don't obey them, they will institute supervised visits. As well as a few other things I tell them go ahead, and I will get there at 10 in the morning and leave at 10 at night, Have them sit there for those hours costing Fraser Health allot of money. Well we won't do that we will try to acomodate you and your hours.
That is when I told them, Try it, I will call every TV station, every New Paper and every Radio station. I have emails for over 100 newspapers, TV stations and Radio stations in Canada. Which I do have. And every email address from Sun Media Corporation. Which is a very large data base of emails addresses I will contact my MLA, MP Pivot legal Society.
At that point I told them they have no idea what I am willing to do to protect my mother from harm. None at all.
My sisters are behind this. I know it. They want mom to die, they want what little money that is left. They want this in their pockets.
I have heard that the staff or someone there, are giving information out to individuals that are not immediate family members. They don`t have any rights to obtain information.
The letter which was given to me today, , I will scan it in and then I will post it on this blog.
Basically, my view is that everyone's is trying to kill my mother. They won`t deny it, they just don`t respond to it when I say anything about it............. No response is a response.
Not very positive
I am extremely pissed off now. And getting madder by the second.
I need to go now, I have to eat and go to bed.
Please continue to pray for my mother and for myself as well
GOD bless and good night.
Kris Schmuland
Sunday, January 3, 2016
A week since mom has..............
It has now been a week since mom has eaten anything. Ok tomorrow will be a week. Yet on the Sunday mom did eat, for me. You see mom will eat and swallow for me. But not them. I wonder why this is. Interesting don't you think.
Speaking with the doctor, he is telling me not to feed her, as she has problems swallowing. And again, I tell him she ate yesterday, so what is the problem.
Well I fed her five spoons full of smoothie yesterday and she swallowed it. A little difficult but she did it anyways.
This is what I have explained to the staff. All they do is tell me it is that time, she is to week to eat and swallow. And the reason is, SHE IS NOT BEING FED.!
I will not allow mom to starve to death. I know what it is like to go without any food for a week or more. They don't understand this. The one nurse said to me, when I told her that mom is not going to starve to death, that I know what it is like to not eat for a week, because I have gone that long and longer without having anything to eat. She tells me that she understands.
BS. She makes over 30 hr. How on earth can she understand this. I hate there attitude on this. They will sooner have someone die, than to try to get them healthy.
I have repeated over and over again. That this is your opinion, and that is it. I understand what you are saying. Now understand me. I am not going to let my mother starve to death and there is only one who makes the decision on who dies or when it is their turn. And that is GOD. Now when GOD tells me it is mom' time, than that I will listen too. Not the nurses or doctors. ONLY GOD.
Over all mom is looking better. Brighter and more awake. We had a few good conversations today I know mom is hungry. So tomorrow I will start to give her smoothie. They tell me mom is low on potassium, well banana`s have lots of potassium and that is what her smoothie`s are made of. Strawberry, banana``s and yogurt. That is all that is in them.
I am getting there at 3 and not leaving until 8:30 or so. Well to catch the 9:00 pm bus. I just sit with mom, talk to her, we listen to music. And watch a little TV. When she wants too.
Mom no longer needs the oxygen all the time. Her breathing is fine now.
Now I want to point out a pattern, a pattern that exists in all nursing homes. Give it a few more days before you feed her. Than it is give it another few more days. At this point they say, she is to weak to eat.. It is time for her to die.
I write this to warn everyone of this pattern. One has to say enough is enough. Time to take matters back into one`s own hands.
Again. I can get mom to eat. But they don`t seem to be able to do this. Or is it, they don`t want to or just don`t bother.
It is not just where mom is. It is rampant. Remember, mom ate last Sunday and then Monday they tell me not to feed her, as she has problems swallowing. She didn`t have any problems swallowing on Sunday. Ok a little, but I was still able to feed her. Period!
Not much to say. I just get up and leave, sit with mom, holding her hand the entire time. And leave later than normal. I just sit there holding her hand and the only time I get up is to go to the washroom.
I am washing her daily, to make her feel better.
I don`t have anyone to cook for, so I am finding that I am not cooking for myself. Crackers, cheese, bread, butter. This is what I have been living on. What is in the freezer is the Christmas dinner I was going to cook for mom. And will once she is back on solid foods. Since it has been a week, it will take a little while to get her eating properly again.
So I have to say good night. I am very tired. I am not sleeping much. I am smoking way more than usual and not liking it.
OK than
GOD bless you and good night
Kristopher Schmuland