Hello again
The day started out okay, I guess. I don't get calls from anyone. The only reason I have a phone is in case something happens to mom. Sure I can read on it, check my emails. Which, by the way are 90% crap, Spam. The only calls I get are from 800,877 numbers. That is it.
So that is what I dealt with this morning. I dismiss them. Now I had to phone an re-schedule my doctors appointment, as they canceled it yesterday, their computers went down. So they couldn't pull up anyone's medical information. Not long ago, the doctors used charts and files. The medical information was right at hand. Just look in the patients file. Now. as it was yesterday. The computer goes down and the office has to close. The office assistant has to call everyone to cancel their appointments. Progress, really!
So now it is Friday I see him.
As the day progressed I became angry. I am at that stage now. I haven't had a full blow break down yet over this diagnosis. Yet to look forward to.
I was able to get mom a few things she needed. Fruit wise and dinner. Will figure the rest of the week out as the days go by.
Yea, the neurologist tells me I need to change my diet. I need to eat healthier, more fruits and vegetables. Less meat, more sea food as well. As the medication I have to take will cause serious constipation. And it doesn't get any better with continuous use. More fiber. I can't even afford to feed myself now with the restricted diet I have to eat now. Because of everything that has been going on with my health.
Now I need to add even more things I can't afford. The neurologist tells me that it is a must that I make these changes to my diet. It will help slow the progression of my disease by eating healthy.
Another thing, I wanted to learn to play the piano for mom. I sing to her, so I want to be able to play the piano and sing to her. Well at Christmas I had a little extra money and I found a full size keyboard on sale for half price. So I bought it. It is sitting in my closet, waiting to be set up when I finally move. I mention this to the neurologist and what comes out of his mouth is. DON'T it will be to frustrating for you. And this will have a serious impact on your life. Not that having Parkinson's isn't enough.
Anyways.
Mom looked great today. A big smile on her face when I arrived. I still need to speak with the manager about the roommates TV.
Now back to mom. We went down to her room and I gave mom as much to drink as she wanted. Very thirsty again. Then she was hungry. No more drinks. I gave her a snack, a bit of chocolate and some grape tomatoes, while I went and warmed up her dinner. Today mom was happy, but didn't want to let go of my hand. I know mom felt very lonely today. Being in White Rock, I could do something about this.
She has a very strong grip. When trying to get my hand free so I can cut something up, give her something, or anything that involves using both hands.
But mom was hungry, as she was yesterday. And she was awake so there wasn't the issue of her being to tired that she chewed and chewed her food. It was chewed and by the time I looked up again, mom was ready for more. I like this. She get the nutrition she needs. The healthy foods. It was a good thing. I had some inari. Some people don't like this, but I do and it seems mom does as well. Well she likes Sushi, so why wouldn't she like Inari. For dessert. And she ate her papaya and her chocolate. She was ready for me to take her down and was her hair. This she let me know.by banging on the arm of the chair. I know what each thing means.
I did this for her, dried and styled her hair. In the tub room, they have a warmer for the towels and they also have sheets in the warmer. So I always put one on her, if she wants it. Sometimes not. But today she did. So by the time I dried and styled her hair, mom was getting really relaxed. Then off to get her ready for bed. But we had to deal with the loudness of the roommates TV. I have anxiety when things are to loud. Or when to many things are on at once. I think it is the loudness, that bothers me.
I did get the staff to turn it down after mom was put into bed. I gave her the spa treatment, but she only wanted her face and arms done. Plus the neck and shoulder massage. After this, mom was done. Ready for sleep. It was still early. So I told her I was just going to pack up. Oh yea, while waiting for mom to be put into bed, the nurse, excuse me, the LPN, came in and gave her the nightly medication. I forgot to give mom something to drink before I started her spa treatment, so I stopped after applying the lotion to her face, gave her something to drink, and did the touch up. re- applied the lotion. Then finished her face, neck and shoulder massage and her arms and hands.
At this point mom was in no mood for me to continue to do her legs. She just grabbed my hand. After I packed up and pull it towards her. Then fell asleep. Without any problems.
It is the greatest feeling in the world, for me, That my mother has that much love for me, that she just trust me and pulls my hand to her. So she can fall asleep. It is a great feeling, warm, that someone cares for me that much. I don't get this anywhere else. As I am alone. Okay I ruined the mood for you by having a bit of a pity party.
I just stayed, as mentioned, everything was done early, so I had plenty of time to just be there for her. I had the TV on, volume off, the music was on. Music goes on as soon as dinner is done. During diner mom watches the news. I don't have cable, I get everything I watch online. So I am not use to commercials. I really dislike commercials. And that is what is on while I hold mom's hand as she is falling asleep. Okay, there are shows on, but I spend most of the time channel surfing. I end up turning the TV off and just stand there holding her hand and listening to music. Singing, softly to mom.
Well it is now Midnight here, Time to go.
Please I really need your prayers. I need to get to White Rock to live. I have no idea how this disease progresses. It it is going to be a problem for me traveling. As it is I have only told one person where mom lives and I already feel like a leaper. I don't even have any conversations with anyone there.
GOD bless and good night
Kristopher Schmuland
