This is the story of my mother and myself. About dealing with the institution, hospitals, the doctors and the PGT. How my mother feels thinks and what she wants. And how, as a care giver for her. My thoughts and feelings. How this all effects both my mother and myslelf. Searching for dignaty and respect. For legal purposes I have to write this is my opinion
Thursday, August 13, 2015
BS at it's best
Hello again
I have been mentioning that I am very poor right now and struggling. Just being able to get the things mom needs.
Yesterday, I was able to get mom some desserts and pudding, plus a few other things. Me not so much, OK, for me nothing at all. Mom has a certain drinks she likes and I have them for her. I thought I did.
I arrive today to find that the rec staff, Val, had moved mom's drinks and desserts to a fridge in the other room. I go to get them and the bag with her drinks was riped open and the bag with her desserts was gone. So now mom went without just about all of her drinks. As the bag was riped open and who knows if anyone to a drink out of any of them. And mom had to go without dessert because they were gone.
What the fuck. I was livid and just about freaking out. OK inside I was freaking out. I asked whomever was around where mom's desserts were and what are they going to do about the drinks. I can't in my right mind give mom something that someone else could of used. Not a chance. And no dessert for mom.
Mom likes chocolate pudding. One of the staff members, tried to do something for mom. But not even close. She offered mom butterscotch pudding and ice cream. Mom will not eat that pudding or the plain vanilla ice cream. So mom went without something she was looking forward too.
The same goes for tomorrow. I don't have the money to replace the drinks or the desserts. And I should not have too.
Mom heard everything I said. I told them now mom is going without and I was starting to get even more upset. So I just told them, this is all I am saying. I am going to stop now, before I freak out.
The RN came and told me to write everything down that was missing. I told him about the drinks,that I can't give them to mom, knowing that someone could of drank out of them.
Mom did understand, but was upset as well. At least she had her Lindt chocolate and papaya. But not what she was looking for.
This is the kind of Bull Shit I have to deal with.
The RN left it for the Patient Coordinator, so I expect a call first thing in the morning. If I don't receive a call by 10 am I will be on the phone.
The only thing that I will accept is, either the replacement of everything by the time I get there or the cost of everything. I had to go to three stores just to get her drinks alone. Not to mention two other stores for her pudding and dessert.
I don't just get everything in one store. They don't have all of what mom likes. I am going from store to store to get mom what she likes. This includes her fruit.
OK besides mom being upset about the dessert and drinks. Which by the way, I have exactly .50 cents to my name. Not even close to the $20.00 it is going to take to replace everything and the time it will take as well.
Now I took my time tonight feeding mom. She has been chewing her food very slowly lately. Taking a very long time to chew a mouth full. Not even a mouth full, tiny bites. A little frustrating. But we had time. I was still very upset while feeding her. I tried and tried to calm down. Eventually, after half an hour I did. I just wasn't paying attention to the time at this point. We didn't even finish until almost 6:30 when the care aid came in to change mom's pad. I quickly got mom changed for bed. It was mom who knew what time it was. She was getting restless.
This staff member was also concerned about the missing items and the drinks. I was very frank with her about this. Telling her I don't have the money to replace everything. That I am not even eating and haven't had a meal in three weeks. I have been living off of crackers for these weeks. You noticed my mood.Well the first week and the second week I was not in a good mood. This week, I have just came to terms with the fact I won't be eating. At least tonight I have crackers. Nothing for the last several days.
Now mom, when finished being changed, was ready for her spa treatment. Yes even though that shit happened, I am still going to do everything that I would do each night for mom. I did this and very tenderly, even more so tonight. I just wanted mom to know that, even though I am upset I am still here for her. I sang loudly to her, I held her hand for allot longer tonight. Didn't even leave until after 8 pm. Around 8:15. Sure I got home later, but who cares. There is nothing here for me.
Even though, not even though. If they do nothing about it tomorrow, I will be going to the news papers about this and will be speaking to them about the tearing of mom's clothing. Even though the staff have been told repeatedly over the last 8 months about it.
I have no clue what I am going to do about things.
I still need hearing aids. I need them more now then every. To fight for not only mom's rights, but for others as well. Here is a story for you.
Last night I ran into someone I know. He does the same as I do, visit his mother daily. Not what I do for my mother, but is there for her. Well he tells me his mom is dead. That the staff were moving her from the bed to a chair and dropped her on her head, face first. They called him and told him his mom had a fall. He rushed there to find her face all messed up, the staff telling him she fell. Then they changed their toon and said they dropped her. They staff, instead of sending her to the hospital, put his mom back into bed. 4 hours later she was dead. Yes four hours later. Not even sending her to the hospital. I told him to speak to a lawyer. They killed her. Negligent homicide. He can't afford one. I said they should take this on, on a contingency basis.
This is why I need hearing aids to help him out as well as others that are going through the same thing. I could barely make out what he was saying to me. It is a good thing I can read lips. Mostly.
Please donate, not for just me, but my mother and the memory of my friends mother. ADSAAC is the organization I wish to start. I have the domain names parked.
Have to go, But the link is www.Gofundme.com/yugmns
GOD bless and good night
Kris