Hello again
So as I mentioned I had an appointment with the neurologist today for a second opinion. Well the answer is in. I do indeed have Parkinson's disease. An incurable debilitating disease. I have the beginning stages of this disease, only to get worse.
So let us round this out. I am loosing my hearing. Can't afford hearing aids and now I find out I have PD Parkinson's disease. PERFECT. NOT!
Anyway, I was out the door before I usually get out of bed. And couldn't fall asleep until after 2 am. Very little sleep and I am very tired. This is going to be a short blog tonight.
Mom was extremely happy to see me tonight. Since I was at the doctor's early and finished everything else. Going to a new seamstress and getting a quote for mom's clothing. I arrived a little bit early to mom's
Just the usual, gave mom her drinks. And a snack. I brought her Sushi and Tempura. Mom enjoys this from time to time. The only thing is mom was chewing very slowly tonight. It does not normally bother me. But being tired and knowing we had to finish so I could do her hair. It was a little bothersome for me today. Impatient I was. I just wanted to get things done. And on Wednesday and Friday is the day I do her hair. We need to finish by a certain time so I can get everything done. And get out and catch my bus. So I am not getting home really late.
Mom will chew and chew and chew, until it is mush. But won't swallow her food. I have to remind her of this. To swallow. Otherwise she will just continue to chew the same thing over and over again. She will even take a break from chewing. This is where I think she is done, but nope. I try to give her little pieces of food. So it is easier for her to chew an swallow. I give her something to drink. Nothing works. I know it is part of her disease. But today I was just impatient. I just found out the truth about what I have been diagnoses with.
I don't even have anyone to talk this over with. Or just someone to listen to me. Do you think anyone at the home even asked me how I was doing or what was wrong. Nothing. And I get along with the night staff just fine. Except for one LPN who has the loose lips and calls the PGT
Now we finally finished dinner and mom and I went to the tub room to wash and style her hair. It never takes longer than 10 minutes. And that is how long it took tonight. But we were behind.
When I finished washing her hair and started to style it, mom started to fall asleep. I quickly brought her back to her room and changed her for bed. The care aid came in and we changed mom. I help this care aid with the changing of mom's pad. I had to run and put her food stuff into the fridge before giving her the spa treatment. Mary was just asleep when I returned. I didn't want to disturb her, but I need to get her face washed and some lotion on her. I did this as fast as I could. Even that was not fast enough for mom.
Mary just wanted to sleep. I finished and then just held her hand for awhile. Until I knew she was fast asleep. I packed up and left.
Got to go now. I need to sleep. But first I have to finish making mom's dinner for tomorrow night. I am to tired to eat. I am sure, excuse me, I hope I am asleep within the hours.
GOD bless and goodnight
Kristopher Schmuland
