Monday, January 19, 2015

Right at it, already

Hello again
Right away, my week has started off being very busy. Needed to get up early today, after a night of restless sleep. Getting up every few hours, not being rested for the rest of the day. I am extremely tired right now and have been all day. And tomorrow and the next few days are going to be the same.

I have an early neurologist appointment Wednesday which means hardly any sleep Tuesday night. Since I don't get home until 10:30 PM. My doctor is very worried about somethings. I am as well.

Have not heard from the ............... So mom is now suffering because of them. Isn't that nice. Great to be old isn't it. Have to suffer at the hands of someone whom only visits once a year. And you don't even know. And this all took place because of her brother. Who had no right to hand mom's life over to the PGT in the first place.

And now she suffers. It is a huge deal to get anything done with these individuals. One almost has to beg to get something done. And then wait until they are good and ready. We are at their beck and call. This is absolute Bullshit.

My mother deserves respect and to be able to have what makes her healthy and happy. They say it benefits me. I don't think so. I go without eating for sometimes a few weeks. I go without allot of things. Clothing that fits, Shoes that don't have holes in them. Warm sweaters.  A decent place to live that I might be able to have heat. Or be close by, so I could walk to see mom and be able to bring mom over once or twice a week.

And all I want for mom is to be happy and healthy. To keep her calm, to keep her alive. To make sure someone is there that loves her and cares for her. To pay my respect for all the years mom had to raise me and then deal with all the other crap.

It is so beautiful when I arrive and mom see's me. The big smile that comes upon her face. And mom is getting worse off. Another "Bull Shit" to that.

So after I arrived to see mom, we went down to her room to give her something to drink and get ready to go for dinner. (By the way, since Al Hogg has brought this rule in, that family members are no longer able to use the microwave, sinks, the fridge, I have had to carry all of her beverages back and forth. That is 12 different bottles of drinks. An extra 15lbs. If I don't do this, mom is going without. I am denying her what she is use to on a daily basis'. So I suck it up and carry everything. I weighed the bag and it is 50 lbs)

I gave mom as much as she wanted to drink, as I always do and then off we went to our table. I then had to get a staff member to heat mom's dinner up. And mom ate and ate. I love that she has a great appetite. Then she was done. Mom does not even have to say anything. I know exactly when mom is done dinner and wants her dessert. I stop at this shop and they have inexpensive desserts. $2.25 for a slice of cheese cake or other desserts. Mom loves them. It is not much, but it makes her happy.

I then got her ready for bed. Changed her, put her nightgown on, put a blanket on her and then waited for the care aid to come in, to put her into bed. This care aid is a regular, so I know exactly what time she will be in.

I gave mom her daily spa treatment. I have been using samples that I have received, to give mom her spa treatment, and I will be running out of these soon. We finished and mom grabbed my hand and fell off to sleep. When her hand relaxed I knew she was completely asleep. So time to head off.

I really need to go now. I am starting to fall asleep. I didn't eat last night, as someone was here when I got home and we talked for a while. Then I needed to do some writing. I looked up and it was almost 1: 30 AM. I just had some crackers and butter. Good enough. I needed to be up early to make a phone call that was a preset time today. Important. but I was up almost every hour  last night. This has been happening allot over the last 6 months. I am completely exhausted.

GOD bless and good night.

Kristopher Schmuland