Hello again
Well today mom is better than yesterday. This is a good thing. Mom is still only allowed thickened water. Which by the way, the staff can only get a half dozen tea spoons full , into mom. where as, when I arrive mom is waiting for me and I can get mom to drink two cartons of this water. Two tetra packs. But I have a trick. I take some and then mom will take some.
I believe they should be doing this test when I am there. That way mom will drink and swallow the water. So mom can move onto the next steps. Having smoothies
And mom is very hungry, I won't eat in front of her. I think it is rude. And when we are watching TV and commercials come on about food, mom gets upset. So I turn the channel immediately. I don't talk about food with her.Except to let her know, to pass this swallowing test and we can get onto the next step and then I can make you the Christmas dinner you missed out on.
They tell me that mom needs to be turned every two hours. I am there for 5 hours and the staff did not come into turn her once. I did complain. Nothing was done.
I did it myself. I don't want mom to get bed soars. So I have been doing this for the last week. It is casuals on right now and they really don't care. There is a certain time mom needs to be changed and that time comes and goes.
This is a hard thing on both mom and I. It was very close there, I stuck by her side. I have been spending 5 or more hours with mom everyday. I sit there, I give her a spa treatment. I sing to her. We watch TV or a movie together. We talk, and I tell her about my day. Well there is not to much to tell her about my day. I get up, get ready, walk to the loop and then spend three hours getting out there, I then spend the time with mom and pack up and walk to the loop, then another three hours coming back by bus. Routine. Not much goes on.
So tomorrow there is a family meeting. And the girls will be there in person. over 9 years since I sat in a room with them. They are strangers to me and I want to keep it that way.
I will not allow them to speak on subjects other than mom and what to do now. I really don't see the point in having this meeting. Because I don't care what the girls think or say. They are never around and have no idea who mom is now. Or anything about her, Or her decline. What she likes and doesn't like.
They still think it is the staff who makes mom's skin so beautiful. Just little old me. Again the only thing any staff member has to do, after I arrive, is to change her pad. I do everything else.
There will be allot of people at this meeting. Another set up, I feel it coming. Thank GOD I am brilliant. I will be taking notes. I will not let this get out of control.. If need be I will call the police. NO ONE IS GOING TO TELL ME THAT IT IS TIME TO LET MOM GO. NO ONE IS GOING TO TELL ME TO STARVE MOM TO DEATH.
It will not be like the last meeting. I will take control immediately. I will not allow the girls to think they have a say. They don't, been through this before.
I will be phoning the lawyer I speak to and ask him about a few things that need to be taken care of.
OK it is late I need to be up early and out of the house. To be at Al Hogg for 1 pm. I need to be there at 12:30 pm. So 9:30 10:00 pm is when I need to leave the place where I stay.
Please pray for mom
GOD bless and good night
Kristopher Schmuland
