Hello again
First I would like to thank the person from Qatar for reading, if you read this again. And again a special thanks to everyone else who has been reading this all along.
It is day two or three of not using my phone for anything but making and receiving calls. It is hard, I cheated, I guess, yesterday. I checked my bank balance on my phone, when a branch of my bank was right across the street. No checking or sending emails, no reading, no movies, no music. Unplugged. I never realized how much I used the phone for everything. Tuned out of society. It is not a matter of data, I have an unlimited plan. It is about being part of society. But it is very difficult, not to reach for the phone when on the bus.
For the last few days, the staff have had mom in her room, the drapes closed, the window closed, in her chair with a blanket on her. It is beautiful out, and being a beach community, The air is a nice salt sea breeze.
Mom is isolated enough, by not being able to speak. Now they put her away from everyone. The first thing I did when I arrived is to make a complaint about this to the nurse and then to the manager. Even though she doesn't speak, it is good for her to be out around other people. Even if it is to just listen to others talk. Being part of something.
This is the shitty day staff and the bitch of an OT.
On top of this I found a dirty diaper sitting on the chair in and around mom's pillows and blankets. Now I had to remove all the pillow cases and blankets. Then I needed to take them home and wash them.
This was not found until after I fed mom. So I was siting in a chair that had the dirty diaper on it. For who knows how long that diaper sat there. At least 3 hours, minimum. The day staff.
The day staff that constantly complained about having a difficult time dressing mom and wanting her clothing to be adapted or to purchase adapted clothing. Well I have had many items already adapted and do you think they are using them. NO. So if I ever hear another word about this, I will let them know what exactly it is that I think. And in the mean time I will now file another complaint. This time I am going to call there union, as well.
Now today I made mom the Rose salad, the big salad that I always make her. I brought a very large container full and it filled the plate up. Mom ate 3/4 of it. Plus some chicken. It was funny, she knew I was bringing it, and I was not fast enough getting it ready for mom. She had no problem chewing and swallowing the salad and chicken tonight.
After she couldn't wait to get into bed. She was full, she was listening to music. Relaxing and just waiting and wanting to get into bed and have her spa treatment completed. The care aid finally came in and mom was more than happy about this. And we know what was next, after she was put into bed. The spa treatment.
After I was finished the head nurse came in and was asking about the dirty diaper and the general cleanliness. I was all over this, explaining that I have found mom in dirty diapers many times. that they have now been leaving mom in the room, blanket on and the drapes and window closed. He is going to look into it. Him I trust.
Now yesterday mom was in her room, and I had to open everything up, again. Bring life into the room, Fresh air. I made her some very good meatballs. Easy to chew,soft and great tasting. I have figured out how to make meatballs that are not dry. Finally! That is the problem with meatballs. Whether you buy them pre made or you make them. To dry. Not anymore. Perfect.
Now the roommate, yesterday asked me why I come 7 days a week. She says that is why GOD created the 7 th day, to rest. I just simply responded by saying that this is one of the top commandments. Top three or four. Above all honor your mother and father. This is what I am doing.
Yes I know it is painful to watch a parent age. Yet it is reality. I do the best I can and don't let mom know I feel pain because of this.
I am just trying to emulate my mother. She is the best person I know. Always did good for people. Was always there.
Mom made me possible, if it were not for mom raising me to the a good person that I am. I wouldn't be able to do what I am doing for her. Taking care of her. Without a second thought about doing it.
People keep telling me I am a good son. Yes, but if were not for mom.
I will leave it like this.
One thing. I am past denial over having Parkinson's. Past anger, I never went or will go to the bargaining stage. I am at the acceptance stage. What am I going to do about it anyways. Nothing. I have it, now I need to just deal with it. Yes is hard to realize this, but I will just do the best that I can.
Please continue to pray or if you wish Donate. So I can move to White Rock or get hearing aids. My hearing is getting worse off. I am constantly having to say excuse me, or pardon me. Or letting people know I am loosing my hearing. I simply can't afford hearing aids and there is no help out there to get them.
GOD bless and good night
Kris Schmuland
