30 c today

Hello again

Well a hot one for us on the west coast of Canada. We have become use to it now. It has been going on now for over 3 months. Probably longer.

I had to stop and get mom some papaya today, but they weren't that good, so I could only get two of them. I will try tomorrow for more. That was all I needed on my way to see and take care of mom. Except I needed to make a stop at the pharmacy to get a prescription for myself. For my Parkinson's disease. Just another drug I need to take to get through the day.

I arrived late, I just didn't see how. But I did anyways. Well late to me is 4:45. Not enough time to say hello to mom and the other people trying to chat with me while I am trying to get mom and get her drinks and other things out of the fridge. Finally I was able to get mom back to her room. She was very tired today. Eyes closed when I arrived, but she knew exactly who it was. That beautiful smile. So I told her she could sleep eat. Just a saying we have. Mom can keep her eye's closed while I feed her. This she has done many times. Mom trusts me completely. I just touch her lip with the fork and she opens up her mouth.

But she didn't need to do that tonight. Yes she ate slowly, at first, than normally. I am finding it what she doesn't like that takes her a long time to chew or something to hard or to big of a piece. So when I see this happening. I either give her a smaller piece or just not give her the item that is causing the problem. It is mom not controlling her tongue, and not swallowing. This is a change, not for the good. I keep an eye on this, and what I feed her. Sometimes it is the served dinner that is all she can handle. But I do try and bring her a home cooked meal. Whenever I can or can afford to make it.

Remember, I will give up having a cook meal, so mom can have a home cooked meal. If that is all I can afford is to make mom something. I will go without. And have many times. I  don't care. Mom is first and I am last. I will keep stating this. Because it is the truth.

So after dinner tonight, instead of waiting to go and wash her dishes until after her pad is changed. I did them in the sink, in her room. This way I could give mom her spa treatment right after she was put in bed and changed. The pad that is. I change her into her nightgown, put her clean clothing away and put the dirty ones in the bag. I do my mother's laundry.

So the spa treatment was done to mom's satisfaction, and she was so relaxed. The music playing and mom with her eye's closed, listening to it. I could see her enjoying the music. As usual.

I rushed to go and put the items back into the fridge and go to the washroom. It is along trip for me, and sometimes I forget, after I get off the bus, to go to the washroom. So I wait until after she eats and is changed.

Back I went to now, just take the time to hold her hand. There was nothing I needed to do. Except pack. Then I held her hand for a while. The funny thing is that mom was tired earlier and when I needed to leave, her eye's were open.

I just had to get going to get back at a decent time to make her dinner for tomorrow. She will love it.

Now it is cooking and I am writing this. I still have another stage left in her meal.

It is the little things that amount to many things. Which make mom happy.

I still need help to purchase hearing aids. www.Gofundme.com/yugmns

Please help. Today it seemed as if everyone was whispering and then they were getting mad at me for not responding to them. Though I didn't hear anything they said.  Bad day for my hearing.

Please continue to pray if you are

GOD bless and good night

Kris Schmuland

 I want to tell you a story that needs to be read. This story is very important 

A few days ago I ran into a friend. You see this friend shares the same experiences as I do. He goes and visits his mother daily. Well no one I know or have heard of does what I do for their loved one's. 

When I ran into him, it was the usual, hello, how are you, it has been a while. etc.... Then it turns to asking how are respected mother's are doing. Here is what you need to hear. 

It tell him my mother is OK, then, he tells me that his mother passed away. Now for the interesting part 

He tells me that he received a phone call one day, not long ago, it was the nursing home. 

They proceeded to inform him that his mother fell and is dead. Passed away. 

Of course he freaks out, as we all would, in this case. So off he goes to the nursing home. When he arrives, there are police outside. They say to him, "There is not going to be any trouble, is there, if there is, we will be right in to remove you" 

So, my friend goes inside to find his mother's face black and blue. The nursing home tells him, again, " she fell, so we put her back to bed and took her temperature" 

Now is this what one would think a registered care facility would do. Or does one think the first thing they would do is call an ambulance. They put her back to bed and took her temperature. They then tell him 4 hours later she was dead. 

He is livid, he is distraught and He is upset and speaking with them. "If she fell how did she get all of these bruises all over her face. how did this happen, were you not watching her. 

It was then they told him. THEY DROPPED HER. yes you heard me. They dropped her. And she died because of them dropping her. 

He didn't know what to do and still doesn't know what to do. She is buried now, but he has taken many, many pictures of his mother, and all of the bruises all over her. 

As he is telling me this story, I am getting angry. I asked him if he has spoken to a lawyer. I don't have the money for a lawyer. I don't know what to do or where to start. I need to do something, but I don't know what to do.. I don't know how to go about doing anything. I just buried my mother. They were going to have me arrested if I caused a problem. 

I tell him this is a serious issue in all care homes. The flagrant abuse that goes on is mind blowing. The problem is protectionism. The homes protect the employee's. 

I tell him he needs to do something about it. They can't get away with this. This type of thing needs to stop and stop now. 

OK I tell him. I have been an advocate for other's with abuse in care homes. I have helped them successfully. I have met, through out my years taking care of mom and advocating for her rights, many individuals who might be able to help you or point you in the right direction. 

But my problem is this. I have not been doing this for a while now, It is to hard to do this when I can't hear everything that is being said to me. I have many people who need help, but I just can't do it. If I can't hear properly, I can't help them. It is not just over the phone. I need to be in personal contact with certain individuals who might be able to help. I need to knock on doors. As I have done in the past. 

The homes are not accountable for the actions of their staff. And protect them.... 

Several years ago, I tried to start an organization to assist families with issues of abuse, within the nursing homes their loved one's stay. I just couldn't get it off the ground. I just didn't have the funds to start it. 

I own the domain names. ADSAAC short for Alzheimer's Dementia Seniors Abuse Action Coalition They are parked. Meaning just sitting there doing nothing. But I can't get it off the ground. 

This is an organization that was born, sort of speak, out of the need to do something about abuse and take action against it. 

Now I need to help my friend. The staff who did this need to be punished. But my friend doesn't know what to do. I do though. This is important. More important than anything. The staff were not paying attention and they killed my friends mother. Nothing is being done about it. 

Doesn't this make you angry. They are getting away with it. 

I can help him, I can knock on doors for him. I can do something. 

I need your help. I started a fundraising campaign for ADSAAC when I got the idea. On the same site. But it never raised anything either. I just renewed it, a few weeks before I ran into my friend. Coincidence or what. 

THE SAD FACT REMAINS. IF I CAN'T HEAR PROPERLY, I CAN'T HELP HIM. 

I need to help him. I need to get hearing aids to do this. The sooner the better. The longer this goes on, without action being taken. The home will think we got away with it, Maybe again might be the best way to say it. 

Action needs to be taken to help me get hearing aids. Not just for my mother, but for my friends mother and all who will and are going through abuse, at the hands of the care homes. 

This is not random, it happens all over the world. And will continue to happen if something isn't done to stop this from happening. 

Maybe I can't stop this from every happening. But I can't certainly try to help me friend 

Please donate. I have always maintained that I need hearing aids to further my advocacy for my mother. And now to get ADSAAC going, so I can legitimize this organization, by registering it. and to use this to help my friend. 

Yet I need to hear in order to do all of this. 

ADSAAC is up on the same fund raising site Gofundme.com 

But it is more important that I get hearing aids. 

Please help me out with this, now more than ever. If your find it in your heart to help with getting hearing aids. Maybe you can spare a little more to get ADSAAC up and running.