Hello again
Well mom is not dealing well with the all night or late night TV watching. I see it when she eats.When mom is tired, she chews her food for a long period of time. And it has been getting longer as each day passes.
I arrived early to speak with the manager, once again, but she was not in. So I will try again tomorrow and if nothing is done immediately, I will be writing the complaint office. (PCQO) I am done with this...... Over a month now and nothing.
Besides this mom was happy and very glad to see me. I started to sing to her as soon as I arrived. And she just loved this. I just felt like singing to her as much as I could today.
When we finally finished dinner it was off to wash her hair. Being Wednesday and all. Mom just loves this. It makes her feel so good. She is smiling when done. And all the way to her room.
I have these new sheets for her and they are made of birchwood. Just like silk, cool and soft. I got a great deal on them. I am afraid mom won't want to sleep on the other sheets anymore. No where near as soft.
The care aid came in and we put mom to bed. Spa treatment time. And I was able to do the whole thing tonight. Then just stood with her, holding her hand. Oh yea I sang our good night song to her, before I stood there holding her hand while she fell asleep.
And for me, Whats new. Nothing. Dealing with this disease is harder than I thought. It is keeping me up at night. What am I going to do. No one to speak with about this. Everyone is afraid to talk to me, thinking I am a leper.
I need to go now.
GOD bless and good night
Kris Schmuland
