I changed the name of the blog, because it is more appropriate this way. It is true to what is happening in our lives. All the hassles, the fighting, the disagreements. that I have to go through to have dignity in mom`s life. To see that mom get`s what she deserves. To make sure mom is treated fairly and she gets the right treatment. Which by the way, has not happened so far.
I do not believe she has Alzheimer`s. I believe mom had a stroke and I am going to get a specialist take a look at her. I am going to, I am going to make the appointment. Not the hospital. I can not trust them. As always.
I have said that I have been walking mom and she is doing great. All I do is steady her and mom does all the work.
Now tonight I get a letter stating that I am not allowed to walk my mother. Now this is how mom is in the wheelchair to begin with. They still live in the past and are not aware of modern medicine.
Before I go on, I would like to state that in the beginning, when the director and I had a meeting, and they told me that they had to deal with their legal department about me writing this blog. And I mentioning to them that if their is nothing to write about, l guess it will be positive statements that I write about. Now I like the place. But it is the same old staff, with the same old belief``s . And if there is something to write about I will write it. With no hesitance.
I research the modern treatments for this disease. And one of the things I know is that after a hip surgery they get the patients up and walking the same day. This is why mom is in a wheelchair now. No one got her up and walking. I am and will continue to do so.
Their is only a occupational trearapist their and no physiotherapist. What they do is not going to get mom walking again. They are not qualified to do this. It is the job of the pysiotreapist job. And they can not find one to work at the hospital.
And the other thing is they keep telling me that things have to go through them. Not so. The dental, never have to go through them. I tell the dental office what mom needs and they book her and tell the staff at Ocean side when mom is going. Please don`t think I am an idiot as they are doing. This gets me mad and causes me to write and write.
This Blog is not going to stop. It is about mom and I and our journey through this disease. This is our story.
I have to speak to the occupational therapist and talk to her and let her know I will be writing a waiver. Releasing the staff from responsibility.
The main problem I have is the people are to worried about their breaks than the patients. If this is the case they should not be working in this type of job anymore. Sorry my opinion only.
It takes allot of compassion to work in this job. I believe that are brains can change and we can re- write the brain.
Example is how I taught myself not to get sick and to manage pain. I no longer need freezing to go to the dentist.The sound of the drill puts me to sleep.
This is how I have trained my mind. And we can re- write our thoughts and beliefs and how we do things. All of our lives. That we do not loose this ability in our old age. Our minds are amazing things.
Again I will not write these things if there is a positive change for the better for mom. As in mom walking and talking again.
Mom will walk and talk again. I know this. I have a treatment plan that mom has to get on. Now I have to get the hospital on board. Well I will.
What I to do now is talk To their legal department and the director and phyciatrist again. And have a serious talk this time. It seems They did not hear me the first time.
I have other news. But it is not the right time to tell you yet.
In the mean time. It is moms Birthday today and I do not even have money to get mom a cake or even a card or a single flower. This is due to the PGT
I apologized for my harshness and nothing.
I want to move to White Rock and the PGT said they would help me with moving. Well that is $2000 right there. And then I would get help with the SUV that would be a one time payment of $5000.This is $7000 in my opinion. If I calculated this correctly.
This I need right away, not in January. As this 6 hour trip is very hard on me. Well it is not. I just can not get the things done I need to do for my health. And my life.
I will do whatever is necessary for mom. But I need to do somethings for myself. I do not get burnt out. I am OK.
^
Well OK if you call not eating everyday, or not having pants, or socks. And have to wear shorts all the time. And not having a proper jacket for this weather.
But besides this I am OK and I keep as healthy as I can.
I have to go.
GOD Bless and good night
Kris
